A Story of a Breast Cancer Survivor’s Journey in Search of Prevention

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Juice Plus 007
Title: LumiGRATE Poster - Top of the Totem Pole
Joined: Sep 1 2010
Posts: 65
User offline. Last seen 13 years 10 weeks ago.

 This is a Conference Call I would like to invite the readers of these postings to sit in on. Please send an email with your contact information so I can give you the conference call numbers. My email is tom@kociemba.com

 

 A Story of a Breast Cancer Survivor’s Journey 

in Search of Prevention 

 

 

 Host: Cynthia Gompers, MA 

Presenter: Gretchen Haughton, MI 

 

 

 CHECK IN @ 10:25 AM est~ 

4:30 PM Denmark 

10:30 AM est, 9:30 AM central, 8:30 AM mountain, 7:30 AM pacific 

 

The call will last about 30 minutes.

 

__________________

Mardy's Note: 12/8/11: The distributor who provided this content on Lumigrate at my encouragement and with my support in the past has messaged through Lumigrate to request the content he provided be removed as he doesn't wish to participate in this 'effort' anymore. The forums at Lumigrate are a social media format, similar to facebook. That would be like contacting facebook and saying "take everything I ever commented on or posted off". Many conversations and exchanges of other providers are woven in 'threads' and that would be disrespectful to the other forum participants who gave their time and energy to participate in the 'social' media of Lumigrate's forums. However, I have changed the UserName to be Juice Plus 007, removed the photo, and am posting this in the signature and removing the contact information that is set up in the signature in order to make it clear this contributor no longer wants to be 'connected' with the posts. Additionally, as time permits, I will work to replace the content with similar but that will entail selecting another person distributing for Juice Plus. I wanted JP represented on Lumigrate because it is a well-known company based on the concept of supplementing fruits and vegetables. Also because JP reaches many people due to it's vast number of distributors; there are 10 in Grand Junction, population 50k or so. In addition to removing the information in the signature for contact, I have changed the username and email address associated with it to route to me if anyone were to send a "private message" to JP007. My first step will be to edit out any internal contact information/links to the requestor. I guess you call this an "imposter"? Grins! I hope this is a clear statement for the users of Lumigrate to view related YOUR forum area and how I manage it. After all, it is YOUR health education (and mine) I'm advocating for but Lumigrate, at the end of the day, is my website. I care a great deal about the users of Lumigrate feeling they are being treated well and providing a forum area which is a FUN place to come get valid, progressive information in a streamlined way when searching for health information our audience of consumers is seeking.

Juice Plus 007
Title: LumiGRATE Poster - Top of the Totem Pole
Joined: Sep 1 2010
Posts: 65
User offline. Last seen 13 years 10 weeks ago.
Re: A Story of a Breast Cancer Survivor’s Journey in ...

 It is my understanding that this call tomorrow on Friday the 14th will not be recorded and is a one time only event.

__________________

Mardy's Note: 12/8/11: The distributor who provided this content on Lumigrate at my encouragement and with my support in the past has messaged through Lumigrate to request the content he provided be removed as he doesn't wish to participate in this 'effort' anymore. The forums at Lumigrate are a social media format, similar to facebook. That would be like contacting facebook and saying "take everything I ever commented on or posted off". Many conversations and exchanges of other providers are woven in 'threads' and that would be disrespectful to the other forum participants who gave their time and energy to participate in the 'social' media of Lumigrate's forums. However, I have changed the UserName to be Juice Plus 007, removed the photo, and am posting this in the signature and removing the contact information that is set up in the signature in order to make it clear this contributor no longer wants to be 'connected' with the posts. Additionally, as time permits, I will work to replace the content with similar but that will entail selecting another person distributing for Juice Plus. I wanted JP represented on Lumigrate because it is a well-known company based on the concept of supplementing fruits and vegetables. Also because JP reaches many people due to it's vast number of distributors; there are 10 in Grand Junction, population 50k or so. In addition to removing the information in the signature for contact, I have changed the username and email address associated with it to route to me if anyone were to send a "private message" to JP007. My first step will be to edit out any internal contact information/links to the requestor. I guess you call this an "imposter"? Grins! I hope this is a clear statement for the users of Lumigrate to view related YOUR forum area and how I manage it. After all, it is YOUR health education (and mine) I'm advocating for but Lumigrate, at the end of the day, is my website. I care a great deal about the users of Lumigrate feeling they are being treated well and providing a forum area which is a FUN place to come get valid, progressive information in a streamlined way when searching for health information our audience of consumers is seeking.

Juice Plus 007
Title: LumiGRATE Poster - Top of the Totem Pole
Joined: Sep 1 2010
Posts: 65
User offline. Last seen 13 years 10 weeks ago.
Re: A Story of a Breast Cancer Survivor’s Journey in ...

 This was an excellent call. It literally brought tears to my eyes once again this week. Gretchen's grand mother and mother both died from breast cancer in their 30's. She also lost her husband of two years to cancer. At the age of 34 she was diagnosed with breast cancer. She is now playing with her grandchildren. 

I would be pleased to know how I can position these calls so that more Lumigrate readers would take part in directly listening  as it is so powerful to hear these stories directly from the person rather than third hand. Please post a reply here or send me an emaiL tom@kociemba.com.

One of the things I learned this week was that the rewards of this work is the work itself regardless of the individual outcome. This work makes my life so much richer.

Check back as I will publish the notes of this call later.

__________________

Mardy's Note: 12/8/11: The distributor who provided this content on Lumigrate at my encouragement and with my support in the past has messaged through Lumigrate to request the content he provided be removed as he doesn't wish to participate in this 'effort' anymore. The forums at Lumigrate are a social media format, similar to facebook. That would be like contacting facebook and saying "take everything I ever commented on or posted off". Many conversations and exchanges of other providers are woven in 'threads' and that would be disrespectful to the other forum participants who gave their time and energy to participate in the 'social' media of Lumigrate's forums. However, I have changed the UserName to be Juice Plus 007, removed the photo, and am posting this in the signature and removing the contact information that is set up in the signature in order to make it clear this contributor no longer wants to be 'connected' with the posts. Additionally, as time permits, I will work to replace the content with similar but that will entail selecting another person distributing for Juice Plus. I wanted JP represented on Lumigrate because it is a well-known company based on the concept of supplementing fruits and vegetables. Also because JP reaches many people due to it's vast number of distributors; there are 10 in Grand Junction, population 50k or so. In addition to removing the information in the signature for contact, I have changed the username and email address associated with it to route to me if anyone were to send a "private message" to JP007. My first step will be to edit out any internal contact information/links to the requestor. I guess you call this an "imposter"? Grins! I hope this is a clear statement for the users of Lumigrate to view related YOUR forum area and how I manage it. After all, it is YOUR health education (and mine) I'm advocating for but Lumigrate, at the end of the day, is my website. I care a great deal about the users of Lumigrate feeling they are being treated well and providing a forum area which is a FUN place to come get valid, progressive information in a streamlined way when searching for health information our audience of consumers is seeking.

Mardy Ross's picture
Mardy Ross
Title: LumiGRATE Poster - Top of the Totem Pole
Joined: Feb 16 2009
Posts: 2032
User offline. Last seen 46 weeks 5 hours ago.
Very good, Thanks, Tom

That likely will be helpful to have notes posted when you have them.  It's such a challenge to provide people with the information in various ways that work for them.  Thank you for your dedication and persistence with that! 

__________________

Live and Learn. Learn and Live Better! is my motto. I'm Mardy Ross, and I founded Lumigrate in 2008 after a career as an occupational therapist with a background in health education and environmental research program administration. Today I function as the desk clerk for short questions people have, as well as 'concierge' services offered for those who want a thorough exploration of their health history and direction to resources likely to progress their health according to their goals. Contact Us comes to me, so please do if you have questions or comments. Lumigrate is "Lighting the Path to Health and Well-Being" for increasing numbers of people. Follow us on social networking sites such as: Twitter: http://twitter.com/lumigrate and Facebook. (There is my personal page and several Lumigrate pages. For those interested in "groovy" local education and networking for those uniquely talented LumiGRATE experts located in my own back yard, "LumiGRATE Groove of the Grand Valley" is a Facebook page to join. (Many who have joined are beyond our area but like to see the Groovy information! We not only have FUN, we are learning about other providers we can be referring patients to and 'wearing a groove' to each other's doors -- or websites/home offices!) By covering some of the things we do, including case examples, it reinforces the concepts at Lumigrate.com as well as making YOU feel that you're part of a community. Which you ARE at Lumigrate!

Juice Plus 007
Title: LumiGRATE Poster - Top of the Totem Pole
Joined: Sep 1 2010
Posts: 65
User offline. Last seen 13 years 10 weeks ago.
Re: A Story of a Breast Cancer Survivor’s Journey in ...

 This is a recording of the call titled:  A Story of a Breast Cancer Survivor’s Journey in Search of Prevention.  By clicking on this link this should download directly into your iTunes.

 

http://candace.audioacrobat.com/download/ec7468f0-aec5-a8f1-6145-5fa5d1ed0e95.mp3 <http://candace.audioacrobat.com/download/ec7468f0-aec5-a8f1-6145-5fa5d1ed0e95.mp3

__________________

Mardy's Note: 12/8/11: The distributor who provided this content on Lumigrate at my encouragement and with my support in the past has messaged through Lumigrate to request the content he provided be removed as he doesn't wish to participate in this 'effort' anymore. The forums at Lumigrate are a social media format, similar to facebook. That would be like contacting facebook and saying "take everything I ever commented on or posted off". Many conversations and exchanges of other providers are woven in 'threads' and that would be disrespectful to the other forum participants who gave their time and energy to participate in the 'social' media of Lumigrate's forums. However, I have changed the UserName to be Juice Plus 007, removed the photo, and am posting this in the signature and removing the contact information that is set up in the signature in order to make it clear this contributor no longer wants to be 'connected' with the posts. Additionally, as time permits, I will work to replace the content with similar but that will entail selecting another person distributing for Juice Plus. I wanted JP represented on Lumigrate because it is a well-known company based on the concept of supplementing fruits and vegetables. Also because JP reaches many people due to it's vast number of distributors; there are 10 in Grand Junction, population 50k or so. In addition to removing the information in the signature for contact, I have changed the username and email address associated with it to route to me if anyone were to send a "private message" to JP007. My first step will be to edit out any internal contact information/links to the requestor. I guess you call this an "imposter"? Grins! I hope this is a clear statement for the users of Lumigrate to view related YOUR forum area and how I manage it. After all, it is YOUR health education (and mine) I'm advocating for but Lumigrate, at the end of the day, is my website. I care a great deal about the users of Lumigrate feeling they are being treated well and providing a forum area which is a FUN place to come get valid, progressive information in a streamlined way when searching for health information our audience of consumers is seeking.

This forum is provided to allow members of Lumigrate to share information and ideas. Any recommendations made by forum members regarding medical treatments, medications, or procedures are not endorsed by Lumigrate or practitioners who serve as Lumigrate's medical experts.

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