"Fibro Forum" in GJ Revisited in Premier PODCAST!

Thanks Dr Young/Chris.  I think Adam was pleased with how it went -- I was totally surprised that he wanted me to do the 'facilitating' and I'm glad you had a good time and we were able to work it all in on your lunch hour.  As I said in our discussion yesterday which we'll be getting 'up on Lumigrate' and letting everyone know how to listen to it when it's edited and posted, you were the medical provider and colleague in your building, where I used to see patients for OT, that really changed the direction of my business and career and when we collaborated and formed the Fibro Forum and I could see how many people WANTED the information but weren't able to be there to get it -- and Lumigrate ended up years later being the result.  (For those who weren't there, it was too hot or too cold or to bright or too dark, or they were too ill or so well they were out doing something FUN, or they were a professional and busy seeing the full docket of patients required in order to just pay your bills anymore and keep the doors open and lights on to be able to practice your profession.)

I look forward to returning to the podcast studio again REAL SOON and maybe telling Adam about what we did that was successful and what we found that were the problems so that other education groups around the country might form or take our information to benefit them.  I know that the social worker on Lumigrate who writes here in the Fibromyalgia area, Aimee Shannon (link to her Forum provided, below), has always been very interested in what I've told her about our groups and she's really tearing up her portion of Ohio with the 'support groups' she has, but I think she's more inclined to be doing education groups and everyone just presumes the word 'support' is the preferred word.   I found it really interesting when you and I were inviting our patients who had done well with fibromyalgia to help us formulate a group, they would NOT come if it was a 'support group' and they were very unhappy with previous ones they had been to.  That's probably because the fibromyalgia population is a very 'difficult to manage' group, and there ARE reasons for that, which you helped me to understand, and I'd really appreciate getting your voice and expertise involved in getting that information out so others can navigate in the most beneficial way.  Because truly, when you come down to the end of the day, those of us who are working SO hard in our professional capacities --- at least all the ones I am affiliated with -- are doing it because they truly want to affect change on the situations they have the capacity to affect.  And you definitely are in that 'pod'. 

Again, thank you for taking the time to help advance Lumigrate and people with fibromyalgia who are seeking quality, progressive information in order to help themselves or others.  We're all in this together and it's going to take all of us together, linking hands virtually, theoretically and sometimes physically, to get from where we are today to where we could be in the future ~~ Mardy

www.lumigrate.com/forums/health-issuesdis-eases/fibromyalgia-chronic-pain-and-chronic-fatigueexhaustion/aimee-shannon-