What Are Your Experiences with Headache?

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Mardy Ross's picture
Mardy Ross
Title: LumiGRATE Poster - Top of the Totem Pole
Joined: Feb 16 2009
Posts: 2032
User offline. Last seen 46 weeks 41 min ago.

My father had chronic headaches and my mother never had a headache.  I was like my mom for the first half of my life and then about the age of 30 I started having what I thought was a sinus headache as it was on one side but I wasn't disabled by it.  So that started my multi-year problem with migraines.  The medications back then had side effects that I didn't like, so I went for years just not treating them.  But finally something came out which worked for me, but they seemed to have remitted a great deal when I got onto bio-identical hormones AND having adjustments if my spine gets out of whack (and then the key is to keep moving, get massages, RELAX (I put that in caps to get anyone who knows me to laugh) so it doesn't get out of whack).  I have a friend who has chronic headaches and I keep hoping she'll find a solution as I did... and I hope you will as well!  The intention of this forum area is to have a positive area for people to share ideas.  So there are mine .. I'll look forward to yours.  Mardy

__________________

Live and Learn. Learn and Live Better! is my motto. I'm Mardy Ross, and I founded Lumigrate in 2008 after a career as an occupational therapist with a background in health education and environmental research program administration. Today I function as the desk clerk for short questions people have, as well as 'concierge' services offered for those who want a thorough exploration of their health history and direction to resources likely to progress their health according to their goals. Contact Us comes to me, so please do if you have questions or comments. Lumigrate is "Lighting the Path to Health and Well-Being" for increasing numbers of people. Follow us on social networking sites such as: Twitter: http://twitter.com/lumigrate and Facebook. (There is my personal page and several Lumigrate pages. For those interested in "groovy" local education and networking for those uniquely talented LumiGRATE experts located in my own back yard, "LumiGRATE Groove of the Grand Valley" is a Facebook page to join. (Many who have joined are beyond our area but like to see the Groovy information! We not only have FUN, we are learning about other providers we can be referring patients to and 'wearing a groove' to each other's doors -- or websites/home offices!) By covering some of the things we do, including case examples, it reinforces the concepts at Lumigrate.com as well as making YOU feel that you're part of a community. Which you ARE at Lumigrate!

frack34
Title: LumiGRATE Poster - Minimal
Joined: Oct 10 2009
Posts: 1
User offline. Last seen 15 years 6 weeks ago.
Re: I'm lucky here....

Marty....I am going threw the same thing....its been years with headaches...i have always thought...they are sinus headaches....but they are getting worse...as I am getting older!! its been so bad, that i drive to my er @ my hospital...and they don't do much...this past time.....they gave me a morphine shot (first time for this)....i rested then...drove home...only to...threw up again on the ride home...now, I get stomach sick...I have to throw up....to get relief from the pain....and i do anything...not to throw up.....so I went to a neurologist the other day...and they have sent me back to square 1....classified them as "classic migraines" but, I do not have noise or light sensitivity.....(I just want to feel better)......the other night...I tired an ice pack...and laid down...for about 1 hour...and I took no pills.....not even an advil or migraine over the counter pill...and it worked....the neurologist wants me to....try a prescription medicine....that he said.....might make me tired....great.....and he wants to see me back in....6 weeks....so I will see....I am not a fan....of prescription medication.....I have tried..several prescription medicines...that i cannot take......they didn't work......thanks for your post...and it helps to know...other people have issues....about headaches...hate them!!

Mardy Ross's picture
Mardy Ross
Title: LumiGRATE Poster - Top of the Totem Pole
Joined: Feb 16 2009
Posts: 2032
User offline. Last seen 46 weeks 41 min ago.
Migraines for ME (and medications for)

I have only once in 20 years with migrains had anything 'visual' which was a green glow over my shoulder for about 1 week when I had a migraine that lasted 10 days.   Maxalt has worked well for me, and I don't have migraines much anymores as for me I think it is a combination of my neck disks/vertebrae being in/out, hormones, and stress.  Which all kind of go hand in hand.  Bioidentical hormones for ME have been a big help I believe in why I don't have them .... And a caveat; estrogen has an effect on tissues such as cartilege and so has ALSO helped keep my body's alignment 'right'.    Hope that helps!  ~~ Mardy

__________________

Live and Learn. Learn and Live Better! is my motto. I'm Mardy Ross, and I founded Lumigrate in 2008 after a career as an occupational therapist with a background in health education and environmental research program administration. Today I function as the desk clerk for short questions people have, as well as 'concierge' services offered for those who want a thorough exploration of their health history and direction to resources likely to progress their health according to their goals. Contact Us comes to me, so please do if you have questions or comments. Lumigrate is "Lighting the Path to Health and Well-Being" for increasing numbers of people. Follow us on social networking sites such as: Twitter: http://twitter.com/lumigrate and Facebook. (There is my personal page and several Lumigrate pages. For those interested in "groovy" local education and networking for those uniquely talented LumiGRATE experts located in my own back yard, "LumiGRATE Groove of the Grand Valley" is a Facebook page to join. (Many who have joined are beyond our area but like to see the Groovy information! We not only have FUN, we are learning about other providers we can be referring patients to and 'wearing a groove' to each other's doors -- or websites/home offices!) By covering some of the things we do, including case examples, it reinforces the concepts at Lumigrate.com as well as making YOU feel that you're part of a community. Which you ARE at Lumigrate!

Alice's picture
Alice
Title: LumiGRATE Poster - Top of the Totem Pole
Joined: Aug 23 2009
Posts: 51
User offline. Last seen 11 years 37 weeks ago.
Re: I'm lucky here....

I have to say I've had headaches off and on all my life.  This summer I started having migraines again and some other kind of headache that never goes away with pain and soreness in my temples, forehead, behind my eyes, neck, jaw  and top of my head.  Because the blood tests and symptoms matched giant cell arteritis I had a biopsy of an artery in my temple.  The result was negative (thank God) but the surgeon said there was inflammation in my veins and he thought I was having a migraine-est type constant headache that is causing the inflammation.  I started eating foods that either do not cause inflammation or reduce it in May due to other inflammatory issues.  That has helped with the severity of the headaches. 

When I have a migraine I have the visual disturbances, a tingling and or numbness in and around my nose and lips and in my hands.  I also experience the nausea, light and sound sensitivity and also a sensitivity to motion. A dark quiet room, a dose of Midrin and sleep are the best helps for me.  My migraines were so frequent and long lasting that the neurologist prescribed Topomax.  I took it about two months and it helped.  I quit taking it because of the way it made my stomach feel.

I quit drinking tea, didn't drink coffee and I quit even the occasional soda.  I even quit eating a small amount of dark chocolate.  I consume little or no caffine. 

I need to check out the hormones that Mardy mentioned.  That could help a lot of issues.

Although I am still having headaches and a migraine about once a week, none of it is as severe as it was the beginning of Summer.

 

__________________

Alice Franklin was raised on a sandy beach in Point Clear, AL and lived along the Gulf Coast from Texas to Alabama in her youth, graduating from Fairhope High School on Mobile Bay. Prior to becoming disabled due to severe spine problems, she worked her way into management and purchasing positions in industrial manufacturing and art industries. She worked her way into Lumigrate unknowingly by impressively writing at Lent 2010 about utilizing her religious and spiritual beliefs with chronic pain/disease management (she has had fibromyalgia and chronic myofascial pain for decades); it turns out she holds the priesthood office of elder in her church and became active again in this office in May 2010 and has been pastor or copastor in previous churches. We are so very proud to have her words and thoughts gracing our 'pages' of this website and look forward to what the future holds for her.

Mardy Ross's picture
Mardy Ross
Title: LumiGRATE Poster - Top of the Totem Pole
Joined: Feb 16 2009
Posts: 2032
User offline. Last seen 46 weeks 41 min ago.
Alice Remind Me..... Ditto.....

Yes, I have the numbness on the left half of my face, which is the side the pain is always on (except for one day for about an hour maybe 20 years ago it went to the right side..... isn't THAT wierd now that it's been another 20 years and never done that again), and I am light, sound sensitive to some extent.  I've never had to go to bed or anything although I will sometimes have to leave work at a normal time instead of working late, etc.   And the Maxalt I mentioned, above a ways, takes away the pain but all the other effects are still there and even the next day the 'hit by a truck' and wrung out feeling is there (or whenever the first day is after the migraine goes away .. as sometimes they'll be a multi-day stretch).  I also sometimes can have complete relief from having my neck adjusted.  But then it's sometimes not that at all, the neck is fine.  I completely have though that for me it has been a function of hormones, stress, and the neck thing.  I have one cervical level that was offered by neurology to be fused in 1995 OR PT (I did PT) and now it's got neighbors above and below that are also kinda getting out of line THOUGH all my symptoms are much better leading me to believe that the bioidentical hormone replacement has been a huge help.  Because I certainly have as much more more stress than some times in the past 20-25 years since getting migraines.  And also important to note I have done a lot with detoxification and cleansing and things along those lines.  Again, there is a one hour video for a small charge by Dr. Lepisto on the website for that reason -- it's good stuff!  And his free full barrel video is only 20 minutes and a great place to start!  

__________________

Live and Learn. Learn and Live Better! is my motto. I'm Mardy Ross, and I founded Lumigrate in 2008 after a career as an occupational therapist with a background in health education and environmental research program administration. Today I function as the desk clerk for short questions people have, as well as 'concierge' services offered for those who want a thorough exploration of their health history and direction to resources likely to progress their health according to their goals. Contact Us comes to me, so please do if you have questions or comments. Lumigrate is "Lighting the Path to Health and Well-Being" for increasing numbers of people. Follow us on social networking sites such as: Twitter: http://twitter.com/lumigrate and Facebook. (There is my personal page and several Lumigrate pages. For those interested in "groovy" local education and networking for those uniquely talented LumiGRATE experts located in my own back yard, "LumiGRATE Groove of the Grand Valley" is a Facebook page to join. (Many who have joined are beyond our area but like to see the Groovy information! We not only have FUN, we are learning about other providers we can be referring patients to and 'wearing a groove' to each other's doors -- or websites/home offices!) By covering some of the things we do, including case examples, it reinforces the concepts at Lumigrate.com as well as making YOU feel that you're part of a community. Which you ARE at Lumigrate!

Faith Young's picture
Faith Young
Title: LumiGRATE Poster - Major
Joined: Jan 24 2010
Posts: 49
User offline. Last seen 12 years 42 weeks ago.
Re: What Are Your Experiences with Headache?

I have chronic migraines. I just got diagnosed after a million tests a few months ago. My doctor tried to give me topamax as well but I didn't want to take it. I don't like the idea of taking a medication everyday "just in case" i get a migraine. I get them ALL the time! I think the longest I've gone without a migraine, or even slight headache would be a few days at max. It got to the point where nothing helped the pain and now I am onto some super drug that I cannot take all the time.  It one pill every hour for five hours and hope it goes away. I cannot take it until the pain of the migraine becomes unbearable (usually 3 to 4 days in).

I wake up with a headache every morning and sometimes it goes away but comes right back. I try to deal with it and most days it is every day. I look forward to the weekend to try to do nothing but relax and try to make the headaches go away, even for a little while. I have a long history of headaches, but only when i turned about 18 or 19 they became real migraines where I'd be in bed for days without being able to move a finger without my head feeling like it was going to explode. The best thing I can do now is just rest in a very dark and silent room and hope it gets better.

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Faith Young is the pseudonym used by one of Lumigrate's longest content providers, as she began writing at the age of 24 in Lumigrate's FIRST year on the Internet!  In real life, this young woman who has been living with FMS for many years received her Bachelors degree in Health Education from Montclair State University and graduated Magna Cum Laude. To further her career, she is currently working on two Masters degrees, one in Counseling from Seton Hall University. Since she is a 6th grade health teacher working to educate students on the importance of being physically and emotionally healthy, we found it best to provider her with a pseudonym of her choice and "Faith Young" is what resonated. In the long run, this very real young woman has faith and hopes be able to use health education in counseling and provide up to date information at Lumigrate which will appeal to the younger people 'out there' and bring them 'in here' to Lumigrate in addition to our more mature adults.  In addition, she is a LumiLiaison for Lumigrate.com and helps facilitate Lumigrate FMS fan pages on facebook.  Search on Lumigrate and Lumigrate: Fibromyalgia and join us related to general and/or FMS specific information; Like us and those #s count with our advertisers and supporters and also allow YOU to keep up with what we're up to!  

Mardy Ross's picture
Mardy Ross
Title: LumiGRATE Poster - Top of the Totem Pole
Joined: Feb 16 2009
Posts: 2032
User offline. Last seen 46 weeks 41 min ago.
I remember those days and want MY kinda days now for YOU

I keep thinking 'what about the hormones'.... I'm hoping you have the info, Candace, on what hormone testing has been done for you.  I'm grateful I wasn't as young as you are when my headaches started and were that consistent.  In retrospect, there was this domino effect that had to do with the adrenal - pituitary - hypothalamus axis (and then all the cascade of hormones from there) that traces back to much the same kinds of things I see in your history and in mine.  It was definitely a process of lots of little things that I'm unraveling and seeing the results from and I HOPE the same same for YOU and anyone else who is in chronic pain and fatigue.  NO FUN, no FAIR, and I just so very admire your courage in that you have taken on this extra leadership liaisoning with Lumigrate.  Had I known this all, I wouldn't have asked but now that I now how effective you are, I'm not sorry I did, and hope that it's something you get results from.  By helping Lumigrate be more rebust, may more answers come your way here, I hope.  ~~~ Mardy

 

__________________

Live and Learn. Learn and Live Better! is my motto. I'm Mardy Ross, and I founded Lumigrate in 2008 after a career as an occupational therapist with a background in health education and environmental research program administration. Today I function as the desk clerk for short questions people have, as well as 'concierge' services offered for those who want a thorough exploration of their health history and direction to resources likely to progress their health according to their goals. Contact Us comes to me, so please do if you have questions or comments. Lumigrate is "Lighting the Path to Health and Well-Being" for increasing numbers of people. Follow us on social networking sites such as: Twitter: http://twitter.com/lumigrate and Facebook. (There is my personal page and several Lumigrate pages. For those interested in "groovy" local education and networking for those uniquely talented LumiGRATE experts located in my own back yard, "LumiGRATE Groove of the Grand Valley" is a Facebook page to join. (Many who have joined are beyond our area but like to see the Groovy information! We not only have FUN, we are learning about other providers we can be referring patients to and 'wearing a groove' to each other's doors -- or websites/home offices!) By covering some of the things we do, including case examples, it reinforces the concepts at Lumigrate.com as well as making YOU feel that you're part of a community. Which you ARE at Lumigrate!

This forum is provided to allow members of Lumigrate to share information and ideas. Any recommendations made by forum members regarding medical treatments, medications, or procedures are not endorsed by Lumigrate or practitioners who serve as Lumigrate's medical experts.

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