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Very Interesting! A Must Read!
The following message was sent by Katerina. She has a wealth of information to provide and has great things to say!
Hello Everyone,
I wanted to bring to your attention KryptoPyrrolUria (KPU) and/or HemoPyrrolLactamUria (HPU) which is basically a biochemical imbalance that has been associated with CFIDS/FM/Lyme, MS, ALS, autism, Parkinsons and other neurologic illnesses, also been implicated in schizophrenia.
KPU is caused by the defect of several of the 8 enzymes needed for the synthesis of heme. Heme is needed for liver detox reactions. In Lyme Disease, it has been postulated that the stealth-like lyme bacteria inactivates a specific enzyme that is critical for white blood cells in the role of the immune system; thereby shutting the immune system down and 'turning it off' completely. This further leads to significant loses of co-factors such as zinc and B6. One of the most common physical attributes to the related condition is 'leukodynia' - or white spots on the nails resulting from Zinc losses.
Diagnosis is difficult as it is performed through urine analysis, however the HPU/KPU compounds are very unstable and tend to breakdown by the time they make it to the lab, causing many false negative results. Nonetheless, there is testing available specifically at Vitamin Diagnostics:
http://www.klinghardtneurobiology.com/KPUtestinstructions.pdf
Instructions are also listed above, however Vitamin Diagnostics has a new address at:
540 Bordentown Avenue, Suite 4930, South Amboy, NJ 08879, Tel: +1 732-721-1234; Fax: +1 732-525-3288
Treatment, according to Dr Klinghardt, can be found here:
http://www.klinghardtneurobiology.com/KPUprotocol.pdf
For more information there is an excerpt from a Dr K lecture here:
http://www.youtube.com/watch?v=N8-yW9eNku0
There is also an article here:
http://betterhealthguy.com/joomla/index.php?option=com_content&view=article&id=171:kryptopyrroluria-aka-hemopyrrollactamuria-a-major-piece-of-the-puzzle-in-overcoming-chronic-lyme-disease-explore&catid=37:publications&Itemid=131
I have been tested and found to be mildly positive. Treatment basically consists of high doses of Zn, B6 and other associated minerals. It is very important to detox heavy metals as you are treated, since the 'good' metals will displace the 'bad' (such as Mercury, Lead, etc) and these need to be shuttled out of the body in order to avoid 're-toxification' events.
I'm always here for any questions.
Best of health,
Katerina
Also, for those fans on facebook. She can be found at http://www.facebook.com/profile.php?id=500241258
Thanks for the support!
Faith Young is the pseudonym used by one of Lumigrate's longest content providers, as she began writing at the age of 24 in Lumigrate's FIRST year on the Internet! In real life, this young woman who has been living with FMS for many years received her Bachelors degree in Health Education from Montclair State University and graduated Magna Cum Laude. To further her career, she is currently working on two Masters degrees, one in Counseling from Seton Hall University. Since she is a 6th grade health teacher working to educate students on the importance of being physically and emotionally healthy, we found it best to provider her with a pseudonym of her choice and "Faith Young" is what resonated. In the long run, this very real young woman has faith and hopes be able to use health education in counseling and provide up to date information at Lumigrate which will appeal to the younger people 'out there' and bring them 'in here' to Lumigrate in addition to our more mature adults. In addition, she is a LumiLiaison for Lumigrate.com and helps facilitate Lumigrate FMS fan pages on facebook. Search on Lumigrate and Lumigrate: Fibromyalgia and join us related to general and/or FMS specific information; Like us and those #s count with our advertisers and supporters and also allow YOU to keep up with what we're up to!
This forum is provided to allow members of Lumigrate to share information and ideas. Any recommendations made by forum members regarding medical treatments, medications, or procedures are not endorsed by Lumigrate or practitioners who serve as Lumigrate's medical experts.
Thx for posting!
There is a wealth of information that one is able to stumble upon during their search for wellness - i am fortunate enough to have come across a lot of it.
Definitely not any sort of doctor, but here to share my experiences/knowledge picked up along the way during my path to wellness.
I have found the most important things for chronic illness are diet and detox. Dr Klinghardt has a lot to say about them and articles can be found on his website listed above.
Here's to our wellness!
katerina
It's people like you, and so many others, Katerina, who bring wellness!
Live and Learn. Learn and Live Better! is my motto. I'm Mardy Ross, and I founded Lumigrate in 2008 after a career as an occupational therapist with a background in health education and environmental research program administration. Today I function as the desk clerk for short questions people have, as well as 'concierge' services offered for those who want a thorough exploration of their health history and direction to resources likely to progress their health according to their goals. Contact Us comes to me, so please do if you have questions or comments. Lumigrate is "Lighting the Path to Health and Well-Being" for increasing numbers of people. Follow us on social networking sites such as: Twitter: http://twitter.com/lumigrate and Facebook. (There is my personal page and several Lumigrate pages. For those interested in "groovy" local education and networking for those uniquely talented LumiGRATE experts located in my own back yard, "LumiGRATE Groove of the Grand Valley" is a Facebook page to join. (Many who have joined are beyond our area but like to see the Groovy information! We not only have FUN, we are learning about other providers we can be referring patients to and 'wearing a groove' to each other's doors -- or websites/home offices!) By covering some of the things we do, including case examples, it reinforces the concepts at Lumigrate.com as well as making YOU feel that you're part of a community. Which you ARE at Lumigrate!