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Hello from New Zealand!
Fri, 01/22/2010 - 9:17pm
Hello,
My name is Emma-Kate, I am from New Zealand and I have been invited here, by Mardy, to discuss FMS a little. I posted a blog entry about it the other day, and it's a subject I would like to retun to in the near future.
I have ME/CFS, with associated pain since I was 13 (I was also born with Cerebral Palsy), I am now 28 and although I remain unwell, I work a little as an Occupational Therapist, and an awareness education teacher, including giving the occasional lecture at our local medical school, and university.
I am really looking for different perspectives from people, experiences, things that others want to see written about (I don't have all the answers unfortunately), and would welcome any suggestions, feedback, or even people who would like to collaborate on writing a post, (Mardy and I worked on the FMS post).
The blog is simply a very objective demonstration about ME/CFS, and associated illness, such as FMS, and the purpose is to share information, provide education and promote awareness.
http://cfsandxmrv.blogspot.com/
http://apps.facebook.com/blognetworks/userpage.php
I hope everyone is well,
ek
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e-mailThis forum is provided to allow members of Lumigrate to share information and ideas. Any recommendations made by forum members regarding medical treatments, medications, or procedures are not endorsed by Lumigrate or practitioners who serve as Lumigrate's medical experts.
The purpose of Lumigrate.com is to "Light the Path to Health and Well-Being", so to have a path through the Internet to New Zealand and someone as amazing as E.K. is so very cool! "Forums" area is for YOU.. US ... to all come with our knowledge and need for it and collaborate, conference, co-mingle, COMMENT.
CERTAINLY, go to ek's blog and facebook 'stuff' and let other's know! What one of my concerns has been as I saw how much momentum was going with facebook and the fibromyalgia community was there is a 'dilution' going on at the same time as there is MUCH more volume of information. People don't know where to go, they're often not finding valid sources ("Valid" inclues "not controlled by vested interests that might not want some information to get out"). Lumigrate's Forum ability and my vision for growths when the website was constructed allows it to accommodate LOTS of people coming here to write, read, post, link ... 'commune'. So please leave comments for ideas HERE so that people can see what you write -- comments on what EK writes here would be great but naturally on her blog or facebook is WONDERFUL too! The more you do with valid places and sources and direct others to them, the better! It can be your good deed for the day! ~~ Mardy
Live and Learn. Learn and Live Better! is my motto. I'm Mardy Ross, and I founded Lumigrate in 2008 after a career as an occupational therapist with a background in health education and environmental research program administration. Today I function as the desk clerk for short questions people have, as well as 'concierge' services offered for those who want a thorough exploration of their health history and direction to resources likely to progress their health according to their goals. Contact Us comes to me, so please do if you have questions or comments. Lumigrate is "Lighting the Path to Health and Well-Being" for increasing numbers of people. Follow us on social networking sites such as: Twitter: http://twitter.com/lumigrate and Facebook. (There is my personal page and several Lumigrate pages. For those interested in "groovy" local education and networking for those uniquely talented LumiGRATE experts located in my own back yard, "LumiGRATE Groove of the Grand Valley" is a Facebook page to join. (Many who have joined are beyond our area but like to see the Groovy information! We not only have FUN, we are learning about other providers we can be referring patients to and 'wearing a groove' to each other's doors -- or websites/home offices!) By covering some of the things we do, including case examples, it reinforces the concepts at Lumigrate.com as well as making YOU feel that you're part of a community. Which you ARE at Lumigrate!