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Fear is a great motivator.
My life changed forever last weekend. Friday evening after my husband had pulled the transmission out of his friend's El Camino ( For you young folks that is a half car, half truck.) We went to our favorite public pier.
We walked all the way to the end of the pier, stopping to talk to people along the way. We watched as one guy got in a small boat and headed out in the high winds and rough waters to retrieve his remote controlled model sail boat. It seems the water was slick as glass when he put the sail boat in the water but the winds picked up really fast and the waves got high. In those high winds the boat stopped responding to the remote control. We both commented that we would not like to be in those waves in that small boat as we watched him go up the bay and come back. He managed to retrieve the sail boat from the water but could hardly hold onto it in high winds.
We talked to a couple of people who were fishing and watched with delight as two small children caught fish. The children were 5 and 6 years old and got so excited when a fish got on their line. They did all kinds of dances and jigs because the excitement was too much for them to be still. We loved watching them and hearing their squeals of delight.
It was a good day. When we got home we ate some pot roast cooked the previous day. That is when the trouble began. My husband started having one of those choking, trouble breathing, weak episodes he has had a few times over the course of the past year. They always happen after he eats a big meal. The difference was that this one would not subside.
He hates all things medical. I have begged him to go to the emergency room when he had these attacks before. He did go to the doctor to be checked out after having one and was given a stress test, but not a nuclear stress test, and was given the all clear on his heart. His new cardiologist says a stress test without the nuclear “not worth a dime”. His exact words.
This time he got scared and volunteered to go the the ER. We went to the hospital where his doctor practices and upon arrival saw the ER was just full of people and there were about twelve police cars and police everywhere. I thought, well, something terrible has happened and they are all here. I began to navigate to a lane where I could head for another hospital. About the same time my husband said: “Don't stop here. I might not ever be seen here. We headed for another hospital.
Upon arrival at the next one I filled out the reason we were there as: trouble breathing, nausea, weakness. Note: He did not and has never had chest pains or pains in his arms or face. They got him into a triage room right away and on back to a room in the ER to be treated. His heart rate was too high, his blood pressure was too high and his blood oxygen was too low.
They put him on a drip right away and drew blood tests to test for evidence of a heart attack. They x-rayed his chest and took him for a ct scan of his lungs to check for blood clots. No blood clots but the blood tests were not completely normal.
If you haven't been in one of the treatment rooms in an ER lately, I can tell you there is no comfortable place for you to be if you are not the patient. There was one hard resin chair with scooped up edges and arms of narrow metal tubing. That was one uncomfortable chair! I paced the floor, sat in that awful chair, got up, stretched, sat down, squirmed, up again, stretching, pacing, hurting, it was a long night. My back was hurting so badly I had to keep praying for myself as I prayed for my husband. I just asked God to allow me to do what I needed to do without being overcome with pain and all the while I was praying for my hubby. My husband told me to go home so I would not get in too much pain, but I was not going anywhere.
About 3 am. the ER doctor came in telling us he would like to keep my husband overnight to monitor his heart. He said his blood tests were not quite normal and he wanted to run tests to find the problem.
God has a way of working things out. My son was in town filming a bar-b-we competition. He only needed to film one competition and had planned to film one of the bar-b-que competions in Florida on previous weekends. He was only here because he could not make it to those events. He was able to finish filming and then stayed with me until his dad was released from the hospital five days later. We were both so glad to have him with us during a difficult time. That was only one thing of many things that I recognized as blessings from our Heavenly Father
On Monday he had a heart catheterization. The waiting room for the this procedure had chairs even worse than the ER. As soon as I sat down I knew I could not sit in those chairs. I opted to stand outside in the hall instead of sitting in the torture chairs. My son was nervous and he paced the hall.
During the heart weatherization, the heart surgeon installed a stent. When he talked to us after the procedure he said my husband has a really weak heart and he would have to let him rest and regain some strength before installing the next two stents. He goes back in two weeks for the additional stents and possibly a defibrillator. It was hard to hear that he was so sick and his condition was so dangerous. I was glad my son was with me.
The next day the cardiologist told him to avoid salt to avoid going into congestive heart failure. He told him to quit drinking anything with caffeine because he has too many extra heart beats and caffeine makes it worse. He told him to quit eating bacon and sausage, eat nothing fried, and only eat lean meat. He said to eat lots of vegetables and fruit. He said all people should eat this way but it was imperative for my husband and my son because this is a hereditary illness.
I've been trying for years to get my husband to quit eating so much bacon and sausage. He otherwise eats well. The man LOVES his bacon and his sausage and never imagined he could do without them. Now, he is glad to be alive and is happy to do without them. Fear is a great motivator.
He has been home since Wednesday is feeling better and thinks he will feel better than that when he gets the other blockages cleared.
I made it through all of the long hours at the hospital without going into a flare. I did have a lot of pain and came home to rest in bed a couple of hours during the course of the day when I could. A few months ago I could not have stayed at the hospital. I am so thankful this did not happen when I was down before and after my spine surgery.
I am also thankful that we now know what was causing those attacks my husband was experiencing and it is being treated. It is so much better to be aware and to have a plan of action to become healthier.
People should not wait until they are faced with such a serious condition to change to a better, healthier lifestyle. Do it now. Perhaps you will be spared heart disease, strokes and other serious conditions. Please listen to me on this one. DO IT NOW.
Note: Here is a link to a good on this subject article by Mardi: http://www.lumigrate.com/blog/heart-and-cardiovascular-health-whats-love-and-erectile-dysfunction-got-do-it
Alice Franklin was raised on a sandy beach in Point Clear, AL and lived along the Gulf Coast from Texas to Alabama in her youth, graduating from Fairhope High School on Mobile Bay. Prior to becoming disabled due to severe spine problems, she worked her way into management and purchasing positions in industrial manufacturing and art industries. She worked her way into Lumigrate unknowingly by impressively writing at Lent 2010 about utilizing her religious and spiritual beliefs with chronic pain/disease management (she has had fibromyalgia and chronic myofascial pain for decades); it turns out she holds the priesthood office of elder in her church and became active again in this office in May 2010 and has been pastor or copastor in previous churches. We are so very proud to have her words and thoughts gracing our 'pages' of this website and look forward to what the future holds for her.
This forum is provided to allow members of Lumigrate to share information and ideas. Any recommendations made by forum members regarding medical treatments, medications, or procedures are not endorsed by Lumigrate or practitioners who serve as Lumigrate's medical experts.
What a story! I'd noticed that I'd thought Alice would be writing about gardening or something last week and nothing had appeared and so I was SO thrilled to see a post from her and then started reading it and had my heart in my throat. Pun intended.
I want to remind people that when these situations occur, there are reasons why we are trained in our emergency response training to call 911 and have people transported professionally. Though I know it's very hard to tell when it's necessary and when you might drive there with the help of someone. My ex husband wouldn't let me come get him when he got his thumb in a piece of woodworking equipment and arguing on the phone was losing daylight but then he ended up NOT there when I got there and he'd been in shock a bit and drove PAST the hospital and had to turn back. So my standard advise is always to take your CPR training and First Aid and all that and do like they tell you.
I was particularly interested in Alice's assessment of the furniture. How IS IT, that our medical system has become so remiss? When I had surgery 3 years ago I didn't even have a sidechair on my side of the room as mine was used by the roommate who had a lot of family, and I had nobody visiting so they borrowed mine but then when I was feeling better and wanted to get up to a chair there was none! I presumed the hospital was still filled to capacity since they had me in such a difficult room (she was delusional, combative, and had family there from 5 am to midnight so it was very disruptive to my rest), and I found out in the end they'd had lots of discharges and had a room I could have moved to! And it was a room never used except when full. I understand it is now a storage room. And I live in a really good community and the hospital is a really good hospital and I had really good insurance and even had offered to pay to have a private room, as back then I could afford such things. What happens to other people, I laid there for 48 hours and thought. And then I started Lumigrate within a year. Remember the movie from the late 70's I believe (Network, I believe) -- "I'm mad as ____ and I'm not going to take it anymore!" ... that's kinda the funny, basic impression I relate to in explaining why I created Lumigrate.
So I got to the end and glowed because I saw that Alice had found the resource on Lumigrate and linked people to it.
And truly, my biggest question ALWAYS is, how do we communicate to people that this minute, this bite and this sip, we all hold the power to have better health, yet we continue to do otherwise? And I hope that this moving piece by Alice's encourages and propels many in a positive direction.
I know I've seen information that was impressive in the past on a progressive and valid cardiac test called the VAP and will hope in the future Lumigrate will extend it's content to these types of subjects. Everyone has a heart, so information on how to best test and treat heart health is certainly desirable from my standpoint.
THANK YOU to Alice for taking the time to write this, and may we all have more comfortable beds and chairs the next time we visit a hospital OR better yet, let's hope we can just get as healthy as can be and not need to!
WELL WISHES to the husbands out there and everyone. Get a good health advocate on your team. I elect Alice be everyone's! She's a wonderful Lumigrate Liaison to get the word out ~~ Mardy
Live and Learn. Learn and Live Better! is my motto. I'm Mardy Ross, and I founded Lumigrate in 2008 after a career as an occupational therapist with a background in health education and environmental research program administration. Today I function as the desk clerk for short questions people have, as well as 'concierge' services offered for those who want a thorough exploration of their health history and direction to resources likely to progress their health according to their goals. Contact Us comes to me, so please do if you have questions or comments. Lumigrate is "Lighting the Path to Health and Well-Being" for increasing numbers of people. Follow us on social networking sites such as: Twitter: http://twitter.com/lumigrate and Facebook. (There is my personal page and several Lumigrate pages. For those interested in "groovy" local education and networking for those uniquely talented LumiGRATE experts located in my own back yard, "LumiGRATE Groove of the Grand Valley" is a Facebook page to join. (Many who have joined are beyond our area but like to see the Groovy information! We not only have FUN, we are learning about other providers we can be referring patients to and 'wearing a groove' to each other's doors -- or websites/home offices!) By covering some of the things we do, including case examples, it reinforces the concepts at Lumigrate.com as well as making YOU feel that you're part of a community. Which you ARE at Lumigrate!
Wow Alice! I'm so very happy to hear your husband in back in your care and you have a plan of attack now to keep him and you healthy!
I also found myself nodding my head when you talked about the chairs. I'll be sitting tomorrow in some as my mom undergoes a procedure. I'm not looking forward to it, but I am taking a chair cushion to help out!
And, I've frequently noticed that when I HAVE to take care of someone else, during my parents 5 joint replacements between them, when they are sick and I have to step up for my young brother, my fibro generally behaves quite well! I swear the fibro knows if it pushes ya, there will be trouble!
Don't forget to take care of yourself especially now while helping your husband. Be very gentle on you and keep us updated on his progress!
Aimee
~~Aimee
Aimee Shannon is a licensed social worker who has fibromyalgia along with a collection of other illnesses. Aimee is passionate that those dealing with chronic illnesses need education and support to best manage their illnesses. Along with writing for Lumigrate, Aimee can be found leading a support group on Facebook, as well as two in person support groups in the Dayton Ohio region. http://www.facebook.com/pages/Fibromyalgia-Support-Groups-by-Aimee/94975642116