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Doctor Oz Says the F Word (Fibromyalgia) for Half of a Show! What Was Shown/Said and Our Followup Opinions
The F word, as I jokingly have called it since the 'dawn of time at Lumigrate', because of the suspicious lack of daytime television shows who cater to female audiences not covering it at all like there was some kind of rule against saying the word on television, was the topic for half of an hour-long episode of the well-known television show, The Dr. Oz Show, airing yesterday, Tuesday, July 23, 2013. The title of the program was/is “The Disease Doctors Miss Most: Fibromyalgia”.
Their description of the episode: “Are you always exhausted and in constant pain? Learn about the latest treatments and discoveries that could heal you.” Guests were advertised as Dr. Jennifer Caudle, a family medicine physician, and Dr. Sean Mackey, a pain specialist. (Notice that they don't give the type of 'doctor', could be an MD, a DO, an ND, a DC a PhD...)
They provided a brief promotional video for the show which you can click on to watch HERE. And you will see that at the end of the half hour (less commercials), Dr. Oz sets up the information for how to take a quiz at their website and how to interact with them on Twitter. If you'd like to view the show, here's what is at their website about it: www.doctoroz.com/episode/disease-doctors-miss-most-fibromyalgia; if you'd rather read and glance over what's said, if that's faster, then please read what I've provided. And then in comments, below, you'll find my 'going over it' with a fine tooth comb, as well as other comments from other Lumigrate experts.
My television info guide said that was the only thing being covered on the show but the second half was about alpha hydroxy acid for the skin and anti-aging/appearances. I saw on what was written on Facebook various places that some people were suprised when they went to break at the bottom of the hour and came back and talked about topical skin treatments for looking younger.
Some history: to my knowledge, of Dr Oz and 'the f word' goes back to October of 2009 when Dr Jacob Teitelbaum said in his e-newsletter he'd recorded a program about fibromyalgia for two days and he'd let us know when it was going to be on, and when that day came, it was only 15 minutes and 'fatigue' was only mentioned once, 'fibromyalgia' was not mentioned at all, and 'exhaustion' was the word that was used. The fibromyalgia community on Facebook was very displeased and in some cases angry. Then in early 2012 they covered it and this is the link to find it at their website, titled: Fibromyalgia: A Real Illness, which you can see at their website, at
http://www.doctoroz.com/videos/fibromyalgia-real-illness-pt-1 . You'll see they have an MD who is one of the network's medical experts on the program talking about how fibromyalgia is diagnosed, and the audience was entirely people who had been diagnosed with fibromyalgia.
As I've done for all the years Lumigrate has been on the Internet, launching just six months prior to the first show I referred to where everyone was up in arms about the big buildup then letdown about "fibromyalgia" FINALLY getting some good coverage on a popular mass media/network television, I'm going to cover this program at Lumigrate. I've typed out what was covered, which you'll see here, below. I have not done that for the program I link to, above, but I am setting that up for your reference if you wish.
In 2009 I had the pleasure of speaking at a conference where Dr Teitelbaum, who later appeared on the Dr Oz show for only 10-15 minutes, had 45 minutes to present as he was keynote (the rest of us had 30 minutes, and I presented about the Lumigrate You! Model and how it applies to patients with chronic pain and fibromyalgia particularly well.) For your information about that, since I think it was better information than what was presented on the first of the now three episodes of Oz about FM, the link is: www.lumigrate.com/forum/jacob-teitelbaum-md-has-come-fatigued-fantastic-0, but certainly look at the Oz website for what they covered in 2009 if you wish and have the time to look into more Oz things rather than more Lumigrate things. I am happy to say that my FB friends were saying "we learned more at Lumigrate over the years and including this week, than from the Oz show." But much of what I learn is from Oz or his experts that I like and then learn further from, or have known before he knows them. Such as with Dr Teitelbaum.
Then I'm going to invite any and all of the applicable Lumigrate experts to comment, below. I'll reserve my personal opinions about this episode of Dr. Oz to be added below in a comment as well. I use the initials, below, of the people who were speaking on the program to indicate who is saying what.
And naturally, I encourage you to go to the Doctor Oz website and watch segments they post and read the comments there, etc. I find that he's an allopathic physician who was tapped by Oprah to become a media superstar and he's done programs where he brings in and credits biggies in the 'outside the box' medical industry such as Joe Mercola, MD.
There are many facets to what was presented today. I think it was a good start, and I think this was an outstanding program to use as a way of talking about many facets related to chronic illness and the allopathic medical model versus the other medical models such as the ones we promote at Lumigrate (collaborative, functional, integrative). Again, I'll be asking to have a discussion about that below in comments with our experts. So come back, I'll be completing typing out the second half of the program's content and then letting the experts know this topic is here for them to read and respond to for you, our valued guests at Lumigrate, whether you're a medical provider or consumer.
The Tuesday, July 23, 2013 Show:
MO (Dr. Oz) Today, I'm talking about one of the diseases that doctors miss most. Here are some of the symptoms: You're exhausted, you're tired, you can't get out of bed. Or your arms and legs are sore. You could have a constant back ache. Joint pain. Or a throbbing headache. Even brain fog.
Is this your normal? If so, you may be one of six million people who have what is called 'fibromyalgia'.
Today, I want to get you to the right diagnosis. Joining me today is Dr Jennifer Coddle (that's how it sounded, but you'll see that later they put her name and association on the screen), who is at the forefront of treating patients with fibromyalgia. Thank you for joining us.
JC: Thank you!
MO: So could you please help folks understand what fibromyalgia is....
JC: Absolutely. Fibromylagia is a chronic pain syndrome. It can be very debilitating for patients. Patients often complain of a number of symptoms. Probably the main one is wide-spread pain, so they have pain all over their bodies -- muscles and connective tissues. And this pain usually lasts three months or longer. In addition to the wide-spread pain, patients have other symptoms, such a the ones you mentioned: headache, fatigue, insomnia, etcetera. So it's really the combination of the pain and these other symptoms that creates this condition. It's sort of an 'invisible condition' because you can look at a patient and not see it on them, but on the inside, they're really struggling with it. It was during the end of her introductory pitch that they posted this information on the screen:
Jennifer Caudle, DO
National Spokesperson for the American Oseopathic Association
MO: What kinds of folks are at risk for this?
JC: This condition mostly affects women. This condition may run in families. We know it can co-exist with other medical conditions, things like rheumatoid arthritis, lupus, etcetera. We also know that sometimes, and this is a theory, that there are stressors or traumas that might bring on the condition in the first place.
Behind them a graphic is showing:
Fibromyalgia Risk Factors: Female. Family History. Rheumatic Disease. Traumatic Event.
MO: Should people think of it as a life-threatening disorder?
JC: Actually, Dr Oz, yes! It's shocking, but yes. Now, fibromyalgia's not a deadly condition, people can live full lives with this condition, but it is life-threatening, and when I say that I mean it in the sense of the holistic sense -- the patient's quality of life is affected. You know, I have patients in my practice with fibromyalgia and I've heard them say things like "Dr Caudle, I feel like I can't get out of bed in the morning because I have so much pain ... I feel like I've been hit by a bus ..... they can't live their life to the fullest, they can't go to work, they can't see their family and friends. So in this respect YES, fibromyalgia absolutely threatens the quality of life that patients have.
MO: So it takes folks an average of three doctor's visits ... three doctor visits ... before getting a proper diagnosis. Now why is that?
JC: Yes, it's pretty alarming, actually, and it's unfortunate. We have to keep in mind that fibromyalgia is a condition that there is no blood test or X-ray for, and this is one of the things that makes it so complex. That and the fact that every patient with fibromyalgia --- they have very different symptoms, they have many different symptoms as you mentioned. Every patient presents very differently. So each fibro patient is usually different from the other.
MO: So, when I went through medical school, through most of my practice, we didn't think fibromyalgia existed. Why did it take so many years, all these patients giving us complaints that in retrospect were this condition, for medicine to accept this was real?
JC: You bring up a really great point, you're absolutely right, in the medical community, even though these symtpoms were going on for years, it really wasn't until about 1990 that we, the medical community, established diagnostic criteria for really diagnosing fibromyalgia. This is a condition that the term 'hypochondriac' or "....oh, the patient's just stressed out, they're just overwhelmed....", those are really inappropriate terms with this condition, because we now know that this is TRULY a medical condition with important diagnostic criteria and also important treatment options as well.
MO: So, essentially, what we're saying is you have to play a role in helping us, helping medicine understand your problems. So here are some main categories of fibromyalgia symptoms.
Graphic full screen and then as a backdrop on the set: Fibromyalgia Symptoms
Pain Depression and Anxiety
Fatigue and Insomnia Irritable Bowel Syndrome
Pain. You've heard us mention that a couple of times. Fatigue and insomnia, depression and anxiety, and irritable bowel syndrome. There are many other symptoms and they can vary from patient to patient as doctor Caudle mentioned. Now, I want you to meet Judy, who had most of these symptoms and yet she spent years searching for the right diagnosis.
Judy's story details summarized generally, and they went to her community and there's video of her in her house and walking around rolling behind her voiceover where she shares her story which is essentially:
Four years ago it began one day when she felt like she had the flu; nauseous, dizzy, pain, couldn't get out of bed. The doctor said she had a virus. It was overall pain. She went to an ENT, neurologist, gynecologist to no avail, they told her she was just stressed. At this point she started to mentall break down, the doctors were making her feel like she was a hypochondriac. "It was the worst year of my life." But then she went to one more doctor and he told her indeed she did have something wrong and it was called fibromyalgia. She reported that just having someone tell her what it was and they could help was a relief.
They then return to the set and she's now on the stage sitting between the doctors (Oz and Caudle).
MO: Thanks for sharing your story. So, you spent a lot of time, a lot of money, a lot of effort to get the right diagnosis. How did it feel when you were told it was all in your head?
J: I felt like I was mad, I was angry, I was upset, but I was scared, because I went through test after test after test ... you know what I mean, I had brain scans, I had sonograms, I had bloodwork, I had upper GIs, I have everything done and they kept saying "Sorry, there's nothing wrong with you." And I'm like: A woman who takes care of 4 kids 24/7 and a family, and now I'm laying in bed and now we're on the third month -- I can't get out of bed....."
MO: It angers me, I gotta say, and I hear these stories all the time, and I'm called about fibromyalgia all the time by you, by our viewers ALL THE TIME, and this is a very common scenario. In fact, I heard you had to bring your family with you to the doctor's office. So why's that?
J: Because I felt like I needed an advocate to say "She's telling you the truth .. you know, she can't get out of bed, she lives a very good life, she's always happy, she's always 'doing', she's never sitting still, and here she is in bed 24/7.
MO: Did any doctor directly say "You're a hypochondriac"?
J: Yeah, I kept coming back to my doctors because I knew something was wrong and one of my doctors said "Maybe it's in your head and you're being a hypochondriac."
Long look from Judy is seen and there is a 'pregnant pause'.
MO: I don't know what to say, I'm speechless .... (he shakes his head and just looks at her and pauses....
J: I went home and cried, and I cried and I cried, and then I started thinking "am I crazy?", you know what I mean? I have a huge social circle, then I'm not going to tell anybody that I'm sick anymore because if the doctors think I'm a hypochondriac, you know, my family and my friends might start thinking there's something wrong with me. ................... (looks exchanged) .... so it's very sad.
MO: So how did you get the right diagnosis?
J: A year and a half later, I'd been sick for the whole year, on and off, usually for three months at a time, and then a year and half later it came back, real strong, real fast and I was in the middle of planning something BIG and I went back to my regular doctor and I said 'I'm sorry but something is wrong with me and I need help NOW" and he had said to me "I'll send you to a rheumatologist". Within 3 months, I mean 15 minutes of meeting with my rheumatologist, he said "I know what you have and I'm going to make you better."
MO: In fifteen minutes!?
J: Fifteen minutes ... but my regular doctor did say 'your back might be up against a wall here, I'm going to be honest with you here, most doctors don't think that fibromyalgia is real'.
MO: Hm
J: Yeah
MO: How did that moment feel, fifteen minutes into your office visit, when you had a diagnosis?
J: Visibly brightens) Like I'm going to live again! You know what I mean, I'm going to be that person I was a year and a half ago, you know, I was trying to hide it from my kids and so it's like they're going to see their mom back and, you know, we're going to get through this and I'm going to sit down at the computer and I'm going to research this and find out as much as I can. I was just so happy.
MO: I've got to say, this story that you're sharing with me, I wish it was unique ... Dr Caudle (he refers with his hand and they pan to her now to bring her into it) mentioned it, there are millions of women who are wandering around right now because most people with fibromyalgia don't know they have it ... who are either feeling it's in their head or being told it's in their head. So what do you have to say to all those folks?
J: You know, I love doctors, I think it's all great but YOU are the best advocate for yourself and you have to say 'No, something is wrong" and you have to keep moving forward until you find the answers because you know yourself better than anybody else and if I would have have just quit, I feel like I'd still be home sick in bed.
MO: You probably would, and many are there who still are at home watching right now because they can't get out of bed, who are walking around with a diagnosis like this or something else, this is not just about fibromyalgia, this is about a lot of problems we just don't have our arms around yet.
J: Yeah --- right -----
MO: 'Cause we have this much (measuring with his hands a small space) figured out and we've got this much more (hands far apart) to figure out.
J: Right
MO: Doctor Caudle, doctor to doctor, I want to have an open discussion about this. Has it gotten to the point where we have to ask our patients to strongarm their doctors?
JC: In a sense, yes! It's important for patients to be advocates, I'm appreciating, really, what you're saying. THis is actually something I say to my own patients all the time and even family and friends: The relationship between a patient and a doctor is just that: It's a relationship. To you as a patient, me as a patient, you (indictating MO) as a patient, we have to feel comfortable with our physicians. We have to feel like we can talk to our doctor and that we are being heard. Doctors on the other hand, we have to be good listeners, we have to do proper physical diagnosis and physical exams, and also hear the patient's story, so this really is a collaboration. And I absolutely agree that if you're not comfortable with your doctor, I've said this to many people, find someone else. Find someone who you can have a productive collaboration with, because that's especially what's needed with this condition in particular.
MO: I'm proud of you for hunting and pecking and not leaving that stuff behind, cause it would have held it back. End of story. (As he'd reached over and physically nurtured Judy sitting next to him). Then they turned their sights to a break and set us up for what they'd present after the break about what causes fibromyalgia, from their perspective, and what can be done about it. I'll break here and get this posted and come back and add that later. It takes me about an hour to watch and type out this first 10-15 minutes of the program.
They returned from commercials to have a 'tip' about caffeine and fibromyalgia. If you notice that you have a 'flareup' after having caffeine, fill your cup with half caff and half decaffeinated was their tip.
Then Dr Oz introduced Tamera - who 'like so many of you, wrote to me and asked if her symptoms could be fibromyalgia'. (How come if so many people write in they're only covering this once a year, I just have to say .....).
Tamera described her symptoms as: extreme fatigue. recent back pain. Foggy brained. She feels like a sandbag when she gets out of bed. This has been going on for a year she reported, but the fatigue has increased in the last two months. Dr Oz said that the 'sandbag' feeling is a good sign it might be fibromyalgia. (I used to say it felt like I was walking through concrete not air is how it felt, or like I had concrete covering me and weighting me down.)
They went to a big diagram of a human body that shows skeleton, major blood supply and intestines/stomach which has a big red dial in the middle of the head. He explains that the game in fibromyalgia is not about the muscles or the joints or the parts of the body like the hands and feet -- it's about the 'pain dial' in our brain. We have a pain dial up there to help us regulate how we feel pain and how long you feel it and do sometime about it. That's a good thing, if you bang your arm you want to sense it and do something about it. You hit your arm, you pull it away and the pain goes away.
That's how it's supposed to function but in fibromyalgia, that pain dial gets turned up. So instead of it just being about you bumping and arm, the whole body gets a signal that something's happened. The brain is overreacting. It's an early warning system gone awry, that's what's going on in fibromyalgia. So now we have to figure out what to do about it.
There's a whole constellation of problems that people can have that contribute: Lyme disease, menopause, etc. Dr Oz was moving to introduce Sean Mackey, MD, PhD, Chief of Pain Management at Stanford School of Medicine.
SM: Fibromyalgia is a condition or disease of the brain, and the neurons that are processing pain in the brain. There is a real difference in how they process normal sensations. The other thing that is going on is the pain alleviating functions of the brain that we all have, has gone haywire. Bottom line: "It is in the brain but it's not 'in your head'."
MO: So what do you think is causing fibromyalgia... what's causing the head to respond differently?
SM: Well that's the million dollar question. We know there are some genetic factors that play a role here, but it really takes an episode that triggers it. It needs something like a minor or significant trauma, injury, sometimes it's an infection or the flu, sometimes it's a little bit of post-traumatic stress .. and I've had patients after a minor motor vehicle accident can get a traumatic PTSD and go on to have fibromyalgia. We've learned that this all sets up this cascade in the brain up, and also sets our stress and our hormone systems out of whack.
MO: I've always thought that diet made a differerence. Am I correct in that assumption?
SM: You know, there's been no specific food that's been shown to 'trigger' fibromyalgia. But what we have found is that, anecdotally, people who eat a healthy diet, rich in whole grains, fruits, vegetables -- and anti-inflammatory diet -- do seem to do better. And speaking of inflammation, we're now learning that inflammation is probably playing a role here but not the type of inflammation that you see in arthritis, but more inflammation along the nerves and in the neurons of the brain... and what's exciting about this is our group and others are now using this information to target new therapies for fibromyalgia.
MO: Thanks for the word you do on this, it's groundbreaking work. (MO turns away from SM and to camera) Now, chronic pain, extreme exhaustion, if these symptoms sound like you, your first line of defense might not be your general internist. Up next I'll tell you what kind of doctor you should see.
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As they return from break they have a woman asking into the camera if chamomile tea can alleviate the symptoms of fibromyalgia. This is what they put on the screen and you hear Dr Oz saying: "There's no direct evidence that chamomile tea works to help fibromyalgia, but it can relax you and help you feel ready for sleep."
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MO: We're talking about fibromyalgia and I don't want you wasting your time and money anymore going from doctor to doctor to get the diagnosis 'that cha need'. Dr Caudle, help us with this (and Jennifer Caudle, DO is back on camera), what is the kind of doctor folks should be looking for advise from in order to make this diagnosis correctly.
JC: Sure, I think it's a great way to start out with your primary care physician. That can be your family doctor or your internist, but you might need a specialist in which case you might see a rheumatologist. Now, a rheumatologist is a specialist who really focuses on musculo-skeletal diseases as well as many others, and they also see lots of fibromyalgia patients so this is a great place to go. We also think neurologists are a great place to go as well because now we're learning so much more about how fibromyalgia affects the brain.
MO: So rheumatologists and neurologists are the two specialists you should ask for if you're in pain, for the right diagnosis. Okay, let's get to treatment. (As they start walking to another part of the stage, and Dr. JC says 'Sure!' We know there are three FDA approved medications that can help fibromyalgia symptoms .... you brought a unique therapy with you today which I adore (as we see a man in a white coat with a woman facing away from him sitting on a portable massage table), it's called ostopathic manipulative treatment and doctor Martin Levine is joining us, he's an osteopathic physician and uses these practices. To teach us, who would this be appropriate for (Sidenote: he interrupts himself when he realizes he hasn't mentioned the woman on the table who is between him and the osteopath doing the demo -- the 'patient')... I'm sorry, Carol?
C: Yes.
MO: Thanks for being the guinnea pig today, Carol.
C: Sure
JC: Osteopathic manipulative treatment is performed by many osteopathic physicians. It's really a way that physicians are able to diagnose and treat musculoskeletal problems with our hands. And really, we're trying to help the body -- the patient's body -- to heal itself. (The camera is showing him with left hand on Carol's shoulder, the other over the top of her head and getting her right ear toward her right shoulder in a pulsing type of movement) So Doctor Levine here, one of the things he was doing initially was feeling for muscle spasms (they use a different camera angle overhead) in our patient's neck, and he's now stretching out the neck muscles (with his right hand on her head he's not flexing it as far to the right and is doing other movements with his right hand controlling her head, neck and everything attached to it) to kind of relieve some of those muscle spasms. Now, it's important to remember that OMT or osteopathic manipulative therapy, er treatment, is fantastic for fibro patients, but there are other treatment options -- meditation, yoga, cognitive behavioral therapy, etcetera, but this is one great option.
MO: Ideally, who benefits the most from these treatments?
JC: Most fibro patients will benefit from it. If you're concerned about if this is a good option for you, make sure you speak with your osteopathic physican about that. Most patients can tolerate OMT very well and actually be very successful. Doctor Levine now (camera pans down to show Carol's shoulders, thoracic and lumbar, hips) is doing a structural exam of our patient's back looking for other muscle spasms. And now one of the things he's going to do (as he invites/directs Carol to lie on the mat, getting into a supine position (face up)) is he'll lie our patient on her back, and this maneuver really is an attempt to restore the patient's body movements and joints back to their normal range of motion. (As this was being said Carol was being lead into crossing her arms so her hands are near the opposite shoulder and the osteopathic doctor is holding her elbow area with his left hand and getting his right hand under her back and gently twisting her).
MO: I hear the cracking, I like that. Everyone giggles, including Carol. (Then the D.O. leans over and pushes his trunk into his hand as he instructs Carol to roll onto her right side, facing him.)
JC: So this is one of the treatments that he routinely performs, as many osteopathic physicians do. This is great for a lot of pain conditions. OMT can be used for things other than fibromyalgia. (The treating osteopath now is shown having Carol's left arm bent and hand on hip as she's side-lying on her right side, and his left hand is stabilizing her shoulder at the joint, his right hand is bending and grabbing her scapula as he makes movements coordinating both hands.) So other chronic pain conditions -- headache, arthritis, low back pain... you name it, but this is a great option.
Pregnant pause, and MO and JC are behind Carol who is lying on her side with the treating D.O. facing them and her, so Dr Oz leans over and says "How're you doing, you okay in there?" (and he leans onto the massage table/mat to get himself in view of Carol if she turns her head. Carol smiles and says "I'm .. I'm okay" and then I can't hear what she says but I think it was 'it feels wonderful'.
MO: (To the D.O.) You keep working, let's let Carol enjoy this (and turns the attention away from Carol). This actually doesn look very, uh, I've actually referred patients for this
JC: Wonderful
MO: and I think these types of osteopathic manipulations are an alternative worth considering as an alternative , especially for conditions like fibromyalgia. So let me speak to everyone about this (as he turns to the camera)... If you're experiencing some of the symptoms that we have talked about today, we've put a quiz online to help you decide if you're at risk. You can go to Doctor Oz dot com and take that quiz. Now listen, I know fibromyalgia is a hot button issue for ya, so our experts will be answering your fibromyalgia questions. Tweet me at hash tag oz answers. You'll help be part of that conversation. (Then he goes on to set up the next segment after they come back from commercial break, which was about skin appearance, acids to put on the face for appearance of anti-aging.)
Live and Learn. Learn and Live Better! is my motto. I'm Mardy Ross, and I founded Lumigrate in 2008 after a career as an occupational therapist with a background in health education and environmental research program administration. Today I function as the desk clerk for short questions people have, as well as 'concierge' services offered for those who want a thorough exploration of their health history and direction to resources likely to progress their health according to their goals. Contact Us comes to me, so please do if you have questions or comments. Lumigrate is "Lighting the Path to Health and Well-Being" for increasing numbers of people. Follow us on social networking sites such as: Twitter: http://twitter.com/lumigrate and Facebook. (There is my personal page and several Lumigrate pages. For those interested in "groovy" local education and networking for those uniquely talented LumiGRATE experts located in my own back yard, "LumiGRATE Groove of the Grand Valley" is a Facebook page to join. (Many who have joined are beyond our area but like to see the Groovy information! We not only have FUN, we are learning about other providers we can be referring patients to and 'wearing a groove' to each other's doors -- or websites/home offices!) By covering some of the things we do, including case examples, it reinforces the concepts at Lumigrate.com as well as making YOU feel that you're part of a community. Which you ARE at Lumigrate!
This forum is provided to allow members of Lumigrate to share information and ideas. Any recommendations made by forum members regarding medical treatments, medications, or procedures are not endorsed by Lumigrate or practitioners who serve as Lumigrate's medical experts.
In my opinion, Dr. Oz, who is about my age I believe, has been 'entrenched' his whole career in allopathy. My education was after his since I took about 10 years off and worked for an air quality research project that was doing policy-changing work, and went to a job getting experience in health education at a major University (Colorado State).
From my standpoint, his show is a hit and miss deal. Sometimes they cover things really well from my standpoint. Other times they just are doing 'dinosaurish' things from 'inside the box'. Which is great if you want to be living inside the box of conventional, modern, insurance-based medicine.
Overall, the Dr Oz show tends to sometimes confuse people, they don't spend enough time or they cram too much information into the portion of a program and talk so fast and throw so much information at people they're not able to really glean much from it that's useful, unless they record it and watch/pause/rewind and 'study' it. I found how much more I got from it when I did as I did in OT school and basically transcribed the notes for you, below. So I hope having a readable version to look at and refer back to, print if you want, highlight ... take to your doctor's office and provide them with a copy perhaps, is helpful. (As with anything you see at Lumigrate).
He's difficult for people to understand because he speaks rapidly and doesn't anunciate well sometimes, but he also is very well-liked because he 'talks like a normal guy', so to speak. For people with brain fog or other neurological impairments and conditions, it isn't effective. And for people who have fibromyalgia, and they mention brain fog as a symptom on this program, it's not a good mix to have lots of information thrown at you. Going SLOWLY and doing lots of visual aids is helpful. So again, I hope this is a useful tool for those who might be looking for information about fibromyalgia or wanted to see what this episode was about. I struggle with how to hit the information at Lumigrate right -- some people who have more time and less pain like to have the stories and information I share from my backgroun/history; others are like Dragnet: Just the facts, Ma'am. We are all roses with some or more thorns, nobody's perfect for everyone, and that applies to medical providers and the consumers out there too.
For the average American out there, I think his show has been one of the most important things to happen for overall well-being. So I have always supported his show and encourage people to at least keep tabs on what they are covering. I set up links to get to their website. Back when Lumigrate was finally up on the internet, which was about 3-5x more work and time and money than had been estimated by the professionals I hired to guide us and do the work entailed, Dr Oz's website was not one yet that they were doing videos or putting ANY information of what was on the shows. Facebook friends would talk about what was covered on the show and many people around the world didn't have Dr Oz where they lived, so I started doing what I've done here, as a public service to those who wanted to know what everyone was talking about. And typically a LOT of people click and read the links that have to do with the Dr Oz show.
Just last weekend the woman in a couple said 'he (indicating her husband) heard about some kind of vinegar he wants to try that's good for your joints'. I don't know how the person they heard about it from had that information but I believe Oz has covered ACV (apple cider vinegar, we've covered it at Lumigrate with a tonic recipe that is our top-read topic right now, compliments of Marc Spurlock, MD, one of our experts.) His show gets massive amounts of people aware of tons of topics and details and at it raises awareness at the very least. Then from there people at least have the Search words to do their homework, as their patient with fibromyalgia said she did after she FINALLY was diagnosed.
But this particular show has really been talked about on Facebook, and I'm one of them. I think it has a lot of facets to it -- it wasn't perfect by any means per the way I look at information today, but I think it was VERY much worth everyone's effort and time/energy to read my recounting of it and see what you can on the Oz website. And then hopefully we'll have interesting expert comments below from our experts 'outside the box'.
It turns out the doctor on this program was the spokesperson from the osteopathic association in America. For the past two years, and intermittently for four years almost, I have had monthly tune-ups from an osteopath who does not operate as a primary care provider, but only does osteopathic manual medicine; in her case she is also a major provider and instructor in cranial vault work and affecting the cranial-sacral system. So I am pleased to see them hitting the tip of the iceberg in this episode about osteopathic medicine.
They delved into a typical story of a typical woman who got missed-diagnosed for 18 months before getting diagnosed and treated, and it was a very good representation of what is happening to millions of people. I've never had a client/patient who wasn't batted around by the 'mangling medicine system' as I like to jokingly refer to our current and antiquated system of medicine in the United States.
Yet the spokesperson stated the average patient with fibromyalgia/FM has three doctor visits before getting diagnosed; that just doesn't add up to me. Maybe I heard it wrong and she said thirty, because he seemed shocked by it. Thirty is more like what I'd experienced, as all the symptoms I had for since I was a baby, child, teenager, I now realize were symptoms that ended up leading to fibromyalgia because nobody recognized those as the domino effect that, if not stopped, would lead to the horrendous mayhem caused by fibromyalgia once I reached midlife. So I encourage people if they have some of the sytmpoms, to look at the UNDERLYING CAUSES, and get those treated. Mine were infections (ear starting at six months, UTIs starting in late teens, bronchitis after not being able to defend myself from cold viruses starting in my 30s, headaches starting in my 20s at the same time as chemical sensitivities/allergies).
I had to stop an education group that met in my place of business once a week, which was primarily about fibromyalgia, because every new person that came in had to vent and cry so much about what had traumatized them from the medical and family and friend communities they were immersed in that it was turning off the other members who were coming because they wanted continuing education about what to do to keep getting better and reversing the symptoms! (There was a shortage of medical providers in the community at the time and there wasn't anyone wanting to do a free or affordable group for them, but I did try! It would be a great way to get new patients but --- the providers had too many patients as it was!) We started the group by inviting our patients, who had been well-handled since they were our patients, to come together, and once we were established we made a flier to give to the allopathic providers in my building -- there were about 20 physicians, MDs and DOs, who saw adult patients.
They only thought of their 'problem'/most involved patients apparently and didn't think of the people who perhaps --- they hadn't realized had fibromyalgia but weren't yet 'train wrecks'. So we got their patients, and since the doctors weren't addressing fibromyalgia well, the patients they sent were just angry, frustrated and needing to cry and vent. Then they would get on board with learning. I understood where they were coming from and it was frustring and I wanted to cry and vent that the situation was what it was for us trying to run the group about EDUCATION, not a 'support group'.
But it made me realize where the needs were and so at Lumigrate in this forum, you will see I set up an area when the public could write in the forums, for venting/crying. I hope everyone reading it will take a page from that and write in a journal or that's what most Facebook groups about fibromyalgia are. I don't facilitate my groups that way, I stick with education and moving toward finding whatever solutions a person can figure out and work on.
It's been very interesting to read what people's opinions have been there, not only on my FB places for myself and Lumigrate, but others I follow. I look forward to seeing what Lumigrate's experts opinions are after they have a chance to read this coverage of the show. Please join us at our FB page: Lumigrate:Fibromyalgia for comments on the link I'll set up about it. That link is
www.facebook.com/pages/Lumigrate-Fibromyalgia/171861550591
Live and Learn. Learn and Live Better! is my motto. I'm Mardy Ross, and I founded Lumigrate in 2008 after a career as an occupational therapist with a background in health education and environmental research program administration. Today I function as the desk clerk for short questions people have, as well as 'concierge' services offered for those who want a thorough exploration of their health history and direction to resources likely to progress their health according to their goals. Contact Us comes to me, so please do if you have questions or comments. Lumigrate is "Lighting the Path to Health and Well-Being" for increasing numbers of people. Follow us on social networking sites such as: Twitter: http://twitter.com/lumigrate and Facebook. (There is my personal page and several Lumigrate pages. For those interested in "groovy" local education and networking for those uniquely talented LumiGRATE experts located in my own back yard, "LumiGRATE Groove of the Grand Valley" is a Facebook page to join. (Many who have joined are beyond our area but like to see the Groovy information! We not only have FUN, we are learning about other providers we can be referring patients to and 'wearing a groove' to each other's doors -- or websites/home offices!) By covering some of the things we do, including case examples, it reinforces the concepts at Lumigrate.com as well as making YOU feel that you're part of a community. Which you ARE at Lumigrate!
Please don't skip to this and read it before you read and absorb what the show's words, above, say to YOU! Most of the people I hear from who follow me and Lumigrate say they want help learning to do for themselve what I do. So I will hope to teach people, somewhat, how to do what I do. For one, I studied this type of information since before I was diagnosed, which was in the last century, so keep in mind I've been at this longer than some or most. And there are people at the longer or having studied it more and are better at it than I am. We are all where we are, YOU are where you are. This is what I saw and evaluate: I'll start at the top and work my way down. And you'll see that I scrutinize this pretty harshly, but I'm not saying at all this show was not worth watching, quite the opposite. It has a lot of layers to dissect and bring out to the light. My 'concerns' are presented, below, to hopefully enlighten you about overall subjects they simply don't have time to cover on a show like his. Such as types of doctors, types of medical models, and the shortcutting and 'dominance' that is shown throughout what they present. Overall, GREAT show and I'm glad they provided it!
I might find more to say, but that's likely enough for right now and I hope other experts that write for Lumigrate have the time and interest in writing comments here as well.
Overall: GREAT of them to cover this. GREAT of them to bring osteopathy into the conversation, to bring a researcher too, and a very good case example with Judy. Great for raising awareness. Some good information here. So I hope between what I've commented on/added here you'll be GRATE with what you know!
Live and Learn. Learn and Live Better! is my motto. I'm Mardy Ross, and I founded Lumigrate in 2008 after a career as an occupational therapist with a background in health education and environmental research program administration. Today I function as the desk clerk for short questions people have, as well as 'concierge' services offered for those who want a thorough exploration of their health history and direction to resources likely to progress their health according to their goals. Contact Us comes to me, so please do if you have questions or comments. Lumigrate is "Lighting the Path to Health and Well-Being" for increasing numbers of people. Follow us on social networking sites such as: Twitter: http://twitter.com/lumigrate and Facebook. (There is my personal page and several Lumigrate pages. For those interested in "groovy" local education and networking for those uniquely talented LumiGRATE experts located in my own back yard, "LumiGRATE Groove of the Grand Valley" is a Facebook page to join. (Many who have joined are beyond our area but like to see the Groovy information! We not only have FUN, we are learning about other providers we can be referring patients to and 'wearing a groove' to each other's doors -- or websites/home offices!) By covering some of the things we do, including case examples, it reinforces the concepts at Lumigrate.com as well as making YOU feel that you're part of a community. Which you ARE at Lumigrate!