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XMRV
XMRV has raised eyebrows and created controversy since it was announced on ABC News shows, then to the rest of the mainstream media, in the fall of 2009. I covered it back then, as well as a very suspicious Dr. Oz show with Dr Teitelbaum, here at Lumigrate. I poked around, calling someone I'd met in the past whose family owns a similar sort of research company to ask their opinion. read more »
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September 7 and 8th, at the NIH building in Bethesda, Maryland, is the "1st International XMRV Conference". Please follow the link below for more information -- conference videos will be available 2-3 days after and this is going to be something for us and our followers to be aware of at the very least. read more »
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YouTube videos which I feel are from valid sources, providing a progressive way of looking at things, I'm trying to 'streamline' things for you put putting them all here in one place on Lumigrate where MANY can see them and refer others to ... read more »
So we all know there is much drama occurring around the XMRV discoveries or lack thereof. It's hard to know what to think anymore.
For me, I never had much hope that the XMRV discovery was going to help those of us with fibro. Perhaps there is a connection with CFS, but that doesn't automatically mean it will mean anything for fibro. I also wondered from the get go if this was going to be a chicken/egg situation. Does XMRV cause CFS or does having CFS leave one open to a retrovirus such as XMRV? read more »
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MUCH discussion is going on right now related to XMRV and I've asked Aimee Shannon to write about if possibly (as she has a Forum on Lumigrate and is quite 'up on it' and possibly has a bit different taken than Emma-Kate Lamb, who you will see has posted something in this Forum in the past which links to her website/blog about chronic fatigue. She, like me, is an occupational therapist but she lives in New Zealand and teaches part time for a University program there which I believe is with a medical school. .... read more »
There is a new blog entry at cfsandxmrv.blogspot.com which objectively looks at the recent XMRV research in the UK. Take care all ek read more »
I received this from Kathy/ admin on a nice group on facebook and thought it was really worth a share here. Please remember that anyone can come to Lumigrate's Forum area and post good things! Grab and oar and jump in! ~~ Mardy (Hi Kathy .. and thanks.. hope this was good I posted this like this, and let me know if not .. and certainly if SO... hope all is well! Mardy) read more »
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Hello,
My name is Emma-Kate, I am from New Zealand and I have been invited here, by Mardy, to discuss FMS a little. I posted a blog entry about it the other day, and it's a subject I would like to retun to in the near future.
I have ME/CFS, with associated pain since I was 13 (I was also born with Cerebral Palsy), I am now 28 and although I remain unwell, I work a little as an Occupational Therapist, and an awareness education teacher, including giving the occasional lecture at our local medical school, and university. read more »
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