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EDS
There's a beautifully done website by a talented young woman who has complex chronic illness and is in collaboration with two artists of stunning work primarily which she uses on the website for the 'tiles' and other key areas. When you arrive you see at the top Welcome and then Peace. Love.Spoons. read more »
I'm preparing information differently in 2015. I'm starting every topic off with a pep talk about how YOU are the one in charge of YOU and your wellness, and that of any other people you are influential with in your home. Often that's your responsibility if they are not of age or for other reasons unable to do the work themselves. I encourage parents to start turning the research on certain things over to their children when they are old enough to participate. read more »
This is our primary topic at Lumigrate on Ehlers-Danlos Syndrome / EDS, which will also then lead into covering POTS (postural orthostatic tachycardia syndrome (in other words POTS is "when you change position your blood pressure and heart rate go wiggy and cause a lot of symptoms, including a feeling of doom / anxiety syndrome") AND a bunch of other things, as EDS / Ehlers-Danlos Syndrome is yet another one of 'overlapping conditions'. read more »
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