Any time I have a little time to build something new on Lumigrate, even if it's just enough to get something 'off the ground' related to a specific need/request for information from someone, I really work to get something posted here to direct them to instead of just telling them and then still not having ANYTHING on Lumigrate.
That is the case with this huge area about the cranial vault that I've been learning more and more about in the last year. I started writing related to Dr. Ilene Spector at the end of 2009 (link blow about that). She brought me up to speed that local holistic dentist Jim Kennedy, who I'd heard co-present with one of my former PT teammates about TMJ and dysfunction treatment in the past, also utilized techniques from The Cranial Academy in his work with the mouth (and head, clearly).
He presented solely this fall at the continuing education about childhood sleep apnea, and I've invited him to provide something for us here at Lumigrate, and know many people have very busy fall seasons that goes into the holiday season and on through New Years. So we shall see when he'll be able to provide some information at Lumigrate, and I'll update this to let you know how to find it (or use the Search bar here at the website).
In the mean time, one of my long-time colleagues ... from 'my previous life' before I moved west to Grand Junction, Colorado, was in town this fall and mentioned she was seeking information about restless legs syndrome. So I set out to refocus on the 'sleep aspect' of information at Lumigrate. And perhaps something is going to come along soon from any or all of the people I have asked about it. So, until more comes along here, I can at least provide this information:
The piece I wrote earlier about Ilene Spector and what she initially taught me and did with me related to cranial techniques long-ago mastered and taught by her via their Academy:
www.lumigrate.com/forum/ilene-spector-do-helping-my-health-head-neck-my-feet [1]
Dr James Kennedy's website is www.dentocranial.com [2].
And I liked this information that I found at Fibromyalgia Network's website, as it seems to stick to the progressive side of allopathy, always a safe place to linger and profess from, and they don't appear to have any vested interest from or in BigPharma. They are membership and member donation funded, so that's a tip to look for if you're a consumer and wanting unbiased information. www.fmnetnews.com/basics-overlap.php [3]
NOT that there is anything wrong with incorporating pharmaceuticals and devices from allopathic, mainstream, I'm all about 'integrating' and bringing in the best of holistic and the best of modern, but using the less natural things only as needed beyond what the natural and holistic provides. And diet is your foundation, as well as other things considered 'lifestyle'.
I hope this is helpful to everyone, and that we get good response here in terms of reads so I can use that to show interest to providers I select which 'fit the bill' for providing to YOUsers of Lumigrate more information, such as I have with Dr. Kennedy, a valid and progressive provider.
Live and learn. Learn and live better! ~~ Mardy
Dr Kennedy and Others are found if you look at what else is in this forum -- editing this on September 9, 2017. Several topics have had 1,000 views, and I hope people are knowing how to navigate the website. You can see the 'map' of the Forum tab, to the container/section, to the forum link ... if you just click on the one at the end (right) you'll then see other topics in the forum. If you click the one before that you'll see what forums are in the section, and if you click Forum you'll get the whole forum area. But to make it easier if you'd prefer, here's a link to the forum showing all the topics that are in this sleep / insomnia forum. www.lumigrate.com/forums/health-issuesdis-eases/sleep-and-insomnia [4]
You will see a sleep survey provided by Dr. Kennedy. I suggest you read and consider taking it and then taking action from there. Take Care! ~ Mardy
Live and Learn. Learn and Live Better! is my motto. I'm Mardy Ross, and I founded Lumigrate in 2008 after a career as an occupational therapist with a background in health education and environmental research program administration. Today I function as the desk clerk for short questions people have, as well as 'concierge' services offered for those who want a thorough exploration of their health history and direction to resources likely to progress their health according to their goals. Contact Us comes to me, so please do if you have questions or comments. Lumigrate is "Lighting the Path to Health and Well-Being" for increasing numbers of people. Follow us on social networking sites such as: Twitter: http://twitter.com/lumigrate [5] and Facebook. (There is my personal page and several Lumigrate pages. For those interested in "groovy" local education and networking for those uniquely talented LumiGRATE experts located in my own back yard, "LumiGRATE Groove of the Grand Valley" is a Facebook page to join. (Many who have joined are beyond our area but like to see the Groovy information! We not only have FUN, we are learning about other providers we can be referring patients to and 'wearing a groove' to each other's doors -- or websites/home offices!) By covering some of the things we do, including case examples, it reinforces the concepts at Lumigrate.com as well as making YOU feel that you're part of a community. Which you ARE at Lumigrate!
Links:
[1] http://www.lumigrate.com/forum/ilene-spector-do-helping-my-health-head-neck-my-feet
[2] http://www.dentocranial.com
[3] http://www.fmnetnews.com/basics-overlap.php
[4] http://www.lumigrate.com/forums/health-issuesdis-eases/sleep-and-insomnia
[5] http://twitter.com/lumigrate
[6] http://www.lumigrate.com/forum/structural-problems-headneckmouth-and-sleep#comment-1025
[7] http://www.lumigrate.com/forum/structural-problems-headneckmouth-and-sleep
[8] http://www.journalsleep.org/ViewAbstract.aspx?pid=25975
[9] http://www.lumigrate.com/forum/structural-problems-headneckmouth-and-sleep#top
[10] http://www.lumigrate.com/user/login?destination=node/654%23comment-form
[11] http://www.lumigrate.com/user/register?destination=node/654%23comment-form
Comments
I got up today after having enjoyed a particularly good sleep -- probably because I had a GI 'bug' yesterday and was really wiped out. I took the day off yesterday and watched movies and ended the night with Saturday Night Live. I woke up today feeling like it was going to take a while to shake off the dreaming and delicious sleep, but within a half an hour I was up and around, feeling rested and restored and grateful for sleeping much better and without medications now.
I don't remember when my sleep problems started, I just know they were there as far back as pre-school age. In elementary I would lie in bed and watch the second hand go round and round on my little electric alarm clock with an orange backlit face. That was the mid 1960s and before the day of our modern electronics, so nothing was 'gentle' when it came to alarms. I sometimes thought it was the fear of the startle response I had from the darned alarm that kept me from sleeping!
I would buy some really neat devices for waking me up over the years, most notably a lamp that would come on low and increase to bright and then go to sounds you could program, also starting out low and progressing louder. I still have that lamp by my bedside, though I don't use it for alarm due to a lot of travel in recent years and relying on something portable. Part of sleep hygiene is consistency.
Today, after making some green tea, I hopped onto Facebook, and one of the first things I saw was a post from one of the fibromyalgia activists using Facebook saying "if I could get this sleep thing figured out, I think that would really take care of a lot of my health problems". I really sympathize with sleep disorder, and feel so grateful to have been getting my health back the past handful of years.
So, I thought I'd spend a little time today and look into finding more info about a "lightbulb" that went off for me at a recent training/seminar given by a dentist who treats the cranial vault and any irregularities through a variety of techniques and devices to re-align the mouth/jaw. It was a seminar specifically about pediatrics and I've covered it at the following topic on Lumigrate www.lumigrate.com/forum/structural-problems-headneckmouth-and-sleep [7]. You'll see I've also posted the following as a follow-up there as well.
Today in my reSearch, I came up with something about women with fibromyalgia and inspiratory airflow limitations. I'm posting the link and the page for you to look at. Naturally, please follow the link and explore this very established, mainstay website related to sleep, and consider purchasing articles you find helpful!
I'd suggest you follow the above link and take a look at the websites that go with that initial piece I wrote about the facial/cranial abnormalities which can cause difficulty with inhilation, and consider going about finding a solution and provider along those lines if you're finding it to match with your situation/ symptoms. Several people I know of had used the 'finder' on 'the cranial academy' website on a piece I wrote about Dr Ilene Spector (D.O.) and linked to The Cranial Academy's website, and found providers in their area that helped them get closer to well-being. She's helped me a great deal, and was the president of the organization when the website was created so that is her 'creation' of information. I thought that was worth an honorable mention here.
From my perspective, in retrospect, it's unbelievable how close I kept coming to getting the proper diagnostic tests that might have avoided years of expense on my quality of life, and indirectly on my income and overall life as a result. In those years, I was involved with someone who had already had palate surgery for apnea and it turned out he had focal apnea, so it did not solve his sleep disturbance AND messed up his harmonica playing for nothing!
He went on to become a wonderful percussionist and has a lot of fun touring around the US banging on his congas. I hear he's in Vegas now and looking to move south from the US (via Facebook). I've seen the bills for sleep studies, I've seen that CPAP and similar DME offered (because they're expensive and make a lot of money for the companies. I'm told there's not a lot of money in the devices so much unless they have oxygen too, they make money off of the oxygen and not the delivery system). I've lived through the reality of trying to live a life with a partner with a VA service connection to Agent Orange and combat situations which gave service connection for their health care needs, who slipped through their cracks about apnea testing and treatment, and therefore he and everyone and everything around him was affected if he did not sleep well. Here's a photo of us, 2002ish.
His dog became my 'radar' first thing in the morning how she reacted to him I could tell if it was a day to proceed with him or go to my home and our separate ways and reduce the things which could trigger an episode. I saw how the CPAP machine changed that for the better. But only 50% of people take to their CPAPs, so other solutions are out there. I suggest people consider trying things that the system doesn't pay for if they can afford it and decide where to start based on what YOU think is right in your case (or the one you're helping with medical things). Here's a photo of her from that era of her life, she was about 14.
He'd follow me when I felt I was to move to Grand Junction in 2004, and move on within the year going his separate way and later thanking me for showing him how I worked diligently and continually on my self in body, mind and spirit growth and problem-solving. I'm happy to see him finding a healthier, happier path. His dog lived to 19, I trust that's when he was not needing her to help him with the difficulties in which she provided distraction and alerting about episodes.
Again, he was helped and loved his, but that's about 1 in 2 people that take to them. A LOT of people who they are recommended to and provided by the system of medicine "refuse them" from the start, or get the device but are non compliant with their use because .... well, they're not that easy to deal with on a number of facets. Yes, they are necessary for many I believe, and clearly reduce the symptoms and medical conditions occurring from breathing problems with sleep.
But if there's a way to 'fry that fish' in a smaller way (like an oral appliance), that costs less, wouldn't that be a good starting point? I think so. The Internet and increasing availability of "off the shelf" devices and tools provide many options today.
About 10 years ago I had a run with lapses of consciousness in the evenings, and my doctor had me do a study to see if I was having seizures when I slept, and so I went to a sleep lab but all they did was watch what happened when I fell asleep and cleared me of whatever was suspected. So close and yet so far to having my apnea problem caught then -- all that preparation (staying up 24 hours, go to the facility, get all wired up and where they can see you with the camera, then back home and to get some real sleep and back to your normal life) and they only had me fall asleep and sent me home. SO frustrating.
That's why I found this latest information about structure of the head and breathing in children an AHA
!
Here's the link for this article at the website, which I encourage going to, but I've also placed the body of the abstract below, so you can see how GOOD this article is. I hope you'll follow the link and learn more, and be on your way to learning further on your own and figuring out solutions for sleep issues.
Live and learn. Learn and Live Better! ~~ Mardy
www.journalsleep.org/ViewAbstract.aspx [8]
Inspiratory Airflow Dynamics During Sleep in Women with Fibromyalgia
Avram R. Gold, MD1,2; Francis Dipalo, DO1; Morris S. Gold, DSc3; Joan Broderick, PhD1
1Division of Pulmonary/Critical Care Medicine and the Applied Behavioral Medicine Research Institute, Stony Brook University School of Medicine, Stony Brook, NY; 2DVA Medical Center, Northport, NY; 3Novartis Consumer Health, Summit, NJ
To determine whether women with fibromyalgia have inspiratory airflow dynamics during sleep similar to those of women with upper-airway resistance syndrome (UARS).
Design:A descriptive study of consecutive female patients with fibromyalgia.
Setting:An academic sleep disorders center.
Patients or Participants:Twenty-eight women with fibromyalgia diagnosed by rheumatologists using established criteria. Fourteen of the women gave a history of snoring, while 4 claimed to snore ‘occasionally’ and 10 denied snoring. The comparison group comprised 11 women with UARS matched for age and obesity.
Interventions:Eighteen of the 28 women with fibromyalgia and all of the women with UARS had a full-night polysomnogram. All participants had a nasal continuous positive airway pressure (CPAP) study with quantitative monitoring of inspiratory airflow and effort between atmospheric pressure and therapeutic CPAP. Fourteen patients with fibromyalgia and all patients with UARS had a successful determination of pharyngeal critical pressure.
Measurements and Results:Twenty-seven of 28 women with fibromyalgia had sleep-disordered breathing. One of the 27 had obstructive sleep apnea hypopnea while 26 had milder inspiratory airflow limitation with arousals. One patient had no apnea or hypopnea or inspiratory airflow limitation during sleep. While the patients were sleeping at atmospheric pressure, apnea-hypopnea index, arousal index, the prevalence of flow-limited breaths, and maximal inspiratory flow were similar between groups. The pharyngeal critical pressure of the patients with fibromyalgia was -6.5 ± 3.5 cmH2O (mean ± SD) compared to -5.8 ± 3.5 cmH2O for patients with UARS (P = .62). Treatment of 14 consecutive patients with nasal CPAP resulted in an improvement in functional symptoms ranging from 23% to 47%, assessed by a validated questionnaire.
Conclusion:Inspiratory airflow limitation is a common inspiratory airflow pattern during sleep in women with fibromyalgia. Our findings are compatible with the hypothesis that inspiratory flow limitation during sleep plays a role in the development of the functional somatic syndromes.
Live and Learn. Learn and Live Better! is my motto. I'm Mardy Ross, and I founded Lumigrate in 2008 after a career as an occupational therapist with a background in health education and environmental research program administration. Today I function as the desk clerk for short questions people have, as well as 'concierge' services offered for those who want a thorough exploration of their health history and direction to resources likely to progress their health according to their goals. Contact Us comes to me, so please do if you have questions or comments. Lumigrate is "Lighting the Path to Health and Well-Being" for increasing numbers of people. Follow us on social networking sites such as: Twitter: http://twitter.com/lumigrate [5] and Facebook. (There is my personal page and several Lumigrate pages. For those interested in "groovy" local education and networking for those uniquely talented LumiGRATE experts located in my own back yard, "LumiGRATE Groove of the Grand Valley" is a Facebook page to join. (Many who have joined are beyond our area but like to see the Groovy information! We not only have FUN, we are learning about other providers we can be referring patients to and 'wearing a groove' to each other's doors -- or websites/home offices!) By covering some of the things we do, including case examples, it reinforces the concepts at Lumigrate.com as well as making YOU feel that you're part of a community. Which you ARE at Lumigrate!