For FMS Awareness, I've asked some of the experts that I know if they would be willing to be involved in activities with Lumigrate as the hub, but that would link with their websites and clinics and etc.
SO, as I get "yes' from them, I'll add to the List here AND I'd like your suggestions! In order to not make those who have been asked but not yet said 'yes' feel pressure to do so, only the ones that want to sound like pirates ('aye') will be listed, as they might have reasons they want to sound like a horse ('nay'). Then the key providers doing this with me will look at the list of people who we have had suggested HERE from YOU and those we asked and gotten 'yes' on do our best to incorporate everyone, and CERTAINLY we'd want them to at the least write here at Lumigrate! Then there'll be one nice archival of information from Fibro Awareness Days 2010 when we wrap up on May 13th after the big day!
Again, We will look here for your suggestions!
The LIST Who Have Agreed so far:
Cinda Crawford (healing / energy medicine)
Mary Moeller (fibro cookbook author)
Wm. Marcus Spurlock (MD, fibro and environmental med specialist)
Mardy Ross (that's me, myself AND I, OT, fibromyalgia specialist)
Paula King (psychology, guided imagery specialist, health coach, performance / sports specialist (Author of A Trust Walk, Mindful Golf, FYI -- little known fact)
Deirdre Rawlings (PhD, ND, author of book on foods and fibromyalgia, ND)
Llenar Bragg (formerly a technology advisor/trainer and now focusing on quantum physics applications to life and health)
Jerry Rand, MD (Bay Recovery, pain mgmt/addiction treatment programs)
Live and Learn. Learn and Live Better! is my motto. I'm Mardy Ross, and I founded Lumigrate in 2008 after a career as an occupational therapist with a background in health education and environmental research program administration. Today I function as the desk clerk for short questions people have, as well as 'concierge' services offered for those who want a thorough exploration of their health history and direction to resources likely to progress their health according to their goals. Contact Us comes to me, so please do if you have questions or comments. Lumigrate is "Lighting the Path to Health and Well-Being" for increasing numbers of people. Follow us on social networking sites such as: Twitter: http://twitter.com/lumigrate [1] and Facebook. (There is my personal page and several Lumigrate pages. For those interested in "groovy" local education and networking for those uniquely talented LumiGRATE experts located in my own back yard, "LumiGRATE Groove of the Grand Valley" is a Facebook page to join. (Many who have joined are beyond our area but like to see the Groovy information! We not only have FUN, we are learning about other providers we can be referring patients to and 'wearing a groove' to each other's doors -- or websites/home offices!) By covering some of the things we do, including case examples, it reinforces the concepts at Lumigrate.com as well as making YOU feel that you're part of a community. Which you ARE at Lumigrate!
Links:
[1] http://twitter.com/lumigrate
[2] http://www.lumigrate.com/forum/experts-field-fibromyalgia-integrating-lumigrate-fmcfs-awareness-campaign#comment-579
[3] http://www.lumigrate.com/forum/experts-field-fibromyalgia-integrating-lumigrate-fmcfs-awareness-campaign#top
[4] http://www.lumigrate.com/user/login?destination=node/419%23comment-form
[5] http://www.lumigrate.com/user/register?destination=node/419%23comment-form
[6] http://www.lumigrate.com/forum/experts-field-fibromyalgia-integrating-lumigrate-fmcfs-awareness-campaign#comment-580
[7] http://www.lumigrate.com/forum/experts-field-fibromyalgia-integrating-lumigrate-fmcfs-awareness-campaign#comment-2268
[8] http://www2.mbc.ca.gov/LicenseLookupSystem/PhysicianSurgeon/Lookup.aspx?licenseType=G&licenseNumber=25749.
Comments
Please leave us questions or topics that you would like to be covered when we talk and have these wonderful experts write or whatever it is they will do with the collaborative Awareness effort here at Lumigrate and our affiliates.
Live and Learn. Learn and Live Better! is my motto. I'm Mardy Ross, and I founded Lumigrate in 2008 after a career as an occupational therapist with a background in health education and environmental research program administration. Today I function as the desk clerk for short questions people have, as well as 'concierge' services offered for those who want a thorough exploration of their health history and direction to resources likely to progress their health according to their goals. Contact Us comes to me, so please do if you have questions or comments. Lumigrate is "Lighting the Path to Health and Well-Being" for increasing numbers of people. Follow us on social networking sites such as: Twitter: http://twitter.com/lumigrate [1] and Facebook. (There is my personal page and several Lumigrate pages. For those interested in "groovy" local education and networking for those uniquely talented LumiGRATE experts located in my own back yard, "LumiGRATE Groove of the Grand Valley" is a Facebook page to join. (Many who have joined are beyond our area but like to see the Groovy information! We not only have FUN, we are learning about other providers we can be referring patients to and 'wearing a groove' to each other's doors -- or websites/home offices!) By covering some of the things we do, including case examples, it reinforces the concepts at Lumigrate.com as well as making YOU feel that you're part of a community. Which you ARE at Lumigrate!
A question for Dr. Rand: Was diagnosed 16 years ago with Fibro and told then most likely had it 20-25 years prior to the diagnoses. After trying numerous meds, several docs recommended fentanyl pain patches. One Pain Specialist had me using 100 + 25 mcg patch at one time plus IV treatments. I did NOT like it, so I changed doctors and went completely off the patches. Tried very hard to stay off them, but it felt like I was just hanging on a ledge by my fingernails and I went back on the patches, just one 25 mcg. I've been on that strength for 12 years, supplementing 'bad days' with hydrocodone, usually the days I have to change patches where I use one pill a day. I also use one hydrocodone pill each night for sleep/pain as well as two muscle relaxers. Do you have any suggestion for something else I could use so I could get off the patches? When I tried the Lyrica, it made my ankles swell so badly, I had to stop. Most doctors I've consulted think I'm doing what's best for me, but I have not seen any new ones for a few years after getting discouraged. I'd respect and appreciate any advice you deem appropriate.
Many thanks, Mona Barfels
Mona, I am really sorry that we never got a response here for you from Dr Rand. I've been going back through Lumigrate and adding a note related to information I'd gotten from concerned former patients, which I'm going to add here as well. I didn't want to remove everything from Dr Rand as much of what he has contributed for education here was helpful information for people to read/learn from and removing things would leave gaps, but I want people to be aware in order to make good decisions about what providers they select to help them individually.
Live and Learn. Learn and Live Better! is my motto. I'm Mardy Ross, and I founded Lumigrate in 2008 after a career as an occupational therapist with a background in health education and environmental research program administration. Today I function as the desk clerk for short questions people have, as well as 'concierge' services offered for those who want a thorough exploration of their health history and direction to resources likely to progress their health according to their goals. Contact Us comes to me, so please do if you have questions or comments. Lumigrate is "Lighting the Path to Health and Well-Being" for increasing numbers of people. Follow us on social networking sites such as: Twitter: http://twitter.com/lumigrate [1] and Facebook. (There is my personal page and several Lumigrate pages. For those interested in "groovy" local education and networking for those uniquely talented LumiGRATE experts located in my own back yard, "LumiGRATE Groove of the Grand Valley" is a Facebook page to join. (Many who have joined are beyond our area but like to see the Groovy information! We not only have FUN, we are learning about other providers we can be referring patients to and 'wearing a groove' to each other's doors -- or websites/home offices!) By covering some of the things we do, including case examples, it reinforces the concepts at Lumigrate.com as well as making YOU feel that you're part of a community. Which you ARE at Lumigrate!